The Simple Woman’s Daybook: January 15, 2019

For Today… January 15, 2019

Simple Woman's Daybook

Looking out my window… dark. It was not bad today — not warm but sunny.

I am thinking… about the design project for my Publisher class on which I am procrastinating by creating this blog post.

I am thankful… for a good start to tutoring this quarter.

One of my favorite things… this song. (I am spoofing it for my design project.)

I am wearing… jammies. It’s only 5:30 p.m., but I’m fighting a cold and it’s been a long day.

I am creating… this blog post. 😉

I am reading… Nailed It by Anne Kennedy.

I am hoping… that people get all the Jennifer/Jenni puns in my design project.

I am learning… about alignment and proximity.

In my kitchen… salad tonight. My cold is making swallowing painful, so it was a chore to find something I actually wanted to eat.

Post Script… this blog. Because her book was AWESOME.

Shared Quote… “‘NO’ is a complete sentence.” — me on Sunday when asking people to write devotions for me this Lent.

Hosted by The Simple Woman.

7 Quick Takes: Dr. Sears Is A Moron Edition

7 Quick Takes

— 1 —

Schadenfreude. I was incredibly happy to see that the State of California temporarily revoked the medical license of Dr. Bob Sears, the idiotic southern California pediatrician whose vaccine book has been denounced by every pediatrician I know (and I hang with some of the best in the nation).

Play stupid games, win stupid prizes, Dr. Sears.

— 2 —

And just a head’s up… the position of this blog is that Dr. Andrew Wakefield is an unethical quack, Dr. Sears should have had his license permanently revoked, and vaccines don’t cause autism. This is not up for debate as their positions have been shown to be both inaccurate and dangerous.

If you want to argue with me about this, please click the lovely little “x” at the top righthand corner of your screen, and go somewhere else. Nobody is paying you to read this blog.

Science, bitches!

— 3 —

My bed. My bedframe was bowing out, and I was having to fix the slats multiple times a day (and night). My dad had plans for a tightening system with wires, and my mom rolled her eyes at him before telling me to go shopping for a new one. I went to a local furniture store, and they delivered it today.

If any of y’all are Skagit County peeps, I really recommend Hansen’s Furniture highly.

— 4 —

School. School started again for me this week, and I am taking a class on Microsoft Publisher this quarter. My instructor is an overachiever, so the website and much of the first half of the course was up this past weekend. This also the instructor who believes in building community, so we always have a fun Introduction discussion board assignment with icebreaker questions.

One thing I’m having to do is save junk mail and take pictures of fliers and posters for design analysis. If any of you see some horribly-designed posters or fliers and want to contribute, let me know. 🙂

— 5 —

Tutoring. I had only one tutoring session this week, and it was quieter than I expected. (The insanity will be next week when everyone is past their introductory week and syllabus quizzes.) I had a couple of truly delightful people who are getting used to their laptops and the whole “online class” thing. It was a nice way to ease back into the quarter.

— 6 —

Climate change. It’s an El Nino year, which I guess means a warmer winter up here… but it’s January with no snow. Srsly?

— 7 —

Prerequisite Minion take. My little black beast has a new nickname. My dad “hates” cats (uh huh… riiiiiiiight…) and jokingly threatened to shave Minion so that instead of being “ferocious”, he’d just be “rocious”. Well… my mom and I thought Rocious would have been a good name for him, so we’re calling him that jokingly.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: Abducted by Aliens Edition

7 Quick Takes

So I was abducted by aliens had a sleep study last night…

— 1 —

Why? I am a crappy sleeper, somewhat narcoleptic during the day, and I snore. I finally got a referral to sleep medicine this summer and saw the specialist at the end of September. He was a bit freaked out by the fact that I was using polysyllabic words but couldn’t follow his finger with my eyes without moving my head. (I was tired, OK?)

— 2 —

Reporting for duty! I went to Skagit Valley Hospital last night, checked in, and was sent down multiple corridors until we finally arrived in the sleep lab. The other abductees patients were two older men. We waited until they were ready for us, and then we were taken to our rooms.

— 3 —

My room for the night. I was expecting a hospital bed, but I walked into a room that looked like a really nice hotel room with a recliner, a bed, a bathroom ensuite, and just beautiful furniture. I probably would have slept like a baby in the recliner, but they wanted me flat on my back with minimal pillows to get the best data.

— 4 —

Checking out the masks. S, my minder, brought in some different CPAP masks and had me try them out. I really didn’t like the “pillow” which involved two things going into my nose and blowing the air pressure in as I felt like I really wanted to breathe through my mouth but couldn’t. The second one covered my mouth and had my nose resting on it. It was cool because I could breathe through either my nose or mouth, and it was really relaxing to wear it.

— 5 —

The sensor attachment. After letting me have some time with the mask, S returned so she could attach the sensors to me. EKG stuff was attached to my chest, a few were run down my shirt and the legs of my pajama bottoms, and the rest were attached to my head and face with some nasty goop. (After a hot shower and application of a hot washcloth, I’m still finding adhesive that hasn’t come off.) I was plugged into a thing that I could actually put around my neck and take to the bathroom with me if I had to get up for that reason.

— 6 —

The part that really felt like an alien abduction. After the sensors were on and I was plugged in, they had to make sure everything was working, so S was contacting me over an intercom and asking me to do things like looking left and right without moving my head, moving my feet a certain way, etc.

In the middle of the night, I got asked via intercom to roll back onto my back (I had rolled onto my side to get to sleep). Apparently, they needed me flat on my back with minimum pillows to get the best results. I complied and went back to sleep pretty fast. I even had some interesting dreams too!

— 7 —

Waking up. S let me sleep until 6:30 a.m. She gave me a hot washcloth to get the adhesive off my face (I’m still finding it in places), and offered some conditioner to dissolve the stuff on my head. I opted to just walk through the hospital looking like the bride of Frankenstein instead, and took a long hot shower when I got home. I managed to get the gunk out of my hair (using all the hot water in the house to do it), and I’m chilling in my jammies in bed (after getting Daniel off to school) pondering a nap. Minion is berserking around my room, and eating the plastic straps that were around my new bed slats (which suck just as much as the old ones and I am biting my thumb at IKEA). I’ll probably drag myself out to get coffee in a bit.

It was a surreal experience, but I slept better than usual… strange as it sounds.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

The Simple Woman’s Daybook: January 1, 2019

For Today… January 1, 2019

Simple Woman's Daybook

Looking out my window… clear and chilly (at least to me) with temps in the 30’s F.

I am thinking… about this coming year.

I am thankful… for Daniel going back to school tomorrow. He’s been chomping at the bit for a few days.

One of my favorite things… ice chips.

I am wearing… long-sleeved blue-green shirt and capris. (I’m home doing a ton of laundry.)

I am creating… things for the parish Lenten devotional book.

I am watching… Daniel play Legos.

I am hoping… Washington beats Ohio State in the Rose Bowl. (The evil team is leading at the moment.)

I am learning… some interesting plays on Words with Friends.

In my kitchen… probably Hot Pockets tonight. Comfort food is bomb.

In the school room… Daniel starts back tomorrow.

Post Script… Svaha: dresses with pockets FTW!

Shared Quote… “Never once did Jesus scan the room for the best example of ?holy living and send that person out to tell others about him. He always sent stumblers and sinners. I find that comforting.” — Nadia Bolz-Weber, Accidental Saints

Closing Notes:

Word of the Year: “Faith”
Saint for the Year: St. Joseph of Cupertino

Hosted by The Simple Woman.

7 Quick Takes: What’s Been Going On Edition

7 Quick Takes

— 1 —

December 18. Daniel had an appointment at the Center for Pediatric Dentistry in Seattle. Verdict: there will be a sedated exam where they can do x-rays, an exam, and a cleaning as well as fix anything that needs to be fixed. This is pretty much exactly what I expected. The dental resident we saw was incredibly good, and I think he’ll be an amazing pediatric dentist when he is done training.

— 2 —

December 19. We had a hearing loss clinic appointment at Seattle Children’s. Some idiot (me) forgot to give Daniel his Adderall before we left, and this made being stuck with him in an exam room for FOUR HOURS (!!!) really fun. We saw speech therapists, an otolaryngologist, an educational specialist, and a genetic counselor.

The genetic counselor was the only one telling us something we didn’t already know — she explained the genetic abnormality that causes his autism, ADHD, and learning disability… and it turns out that Seattle Children’s has a clinic for it. The providers there hadn’t ever seen Daniel’s genetic report before that day, so the genetic counselor was like a kid in a candy store because there were SOOOOOO many cool things in it, enough that she is still studying it and figuring things out. Woohoo.

Also… the genetic abnormality is inherited from a parent (70%) or present when the baby is forming (30%). In other words, all those who claim that vaccines cause autism can shut your pieholes because YOUR ARGUMENT IS INVALID.

— 3 —

December 22. My evil twin, The Girl (his wife), and my nephew Braden arrived. Braden is still cute and a total flirt. He also didn’t want to let his parents sleep and got mouthy (as only a 6 month old can) at midnight, letting them know about his displeasure.

— 4 —

December 23. The evil twin woke up with his eyes red and drippy. He hauled butt to Urgent Care while I was at church, and the nice PA diagnosed him with “ninja pink eye”. Thus began his regimen of having to put nasty ointment in his eyes, wash his hands every time he touched his face, and apply enough hand sanitizer that his hands started to look as bad as mine. Because I am a nice sister, I dug through my collection of hand gels and found the only one that wasn’t pink to give to him. (My favorite scent is Apple and the Walgreens version is either neon green or pink.)

— 5 —

December 24. My little cherub woke up with a rash spreading on his face that my mom thought might be impetigo. Because I am an obedient daughter (and because it was my mommy’s birthday), I tossed clothes on and headed to the closest Urgent Care with the shortest wait time. I was remarking to the triage nurse that Daniel hates being in small rooms (as to why he was flipping out), and she asked if we wanted to wait in the waiting area that has floor-to-ceiling windows and an open plan. (I almost kissed her feet.) The nice nurse practitioner in the elf onesie (no, I am not kidding) said it was *PROBABLY* not impetigo, but the treatment she wanted to do would take care of it if it was. We now have goop to put on his face three times a day until the 3rd. Fun.

Once I got home, got a feed into my sweet child, and got his antibiotics, I made my mama a batch of these cookies as her birthday cake. Because I am awesome. Also… I had to be at church at 6:30 for choir and was going to be ditching her birthday dinner, so they were my apology. (Dicing the rings of sweetened dried pineapples with Mom’s kitchen scissors also probably worked off some time from Purgatory.)

Church was awesome… of course.

— 6 —

December 25. We had 15 people at the house for an early Christmas dinner. T’was epic… with some amazing ham, potatoes, some veggie dishes that I avoided, and two kinds of cheesecake for dessert (white chocolate peppermint for the win!). The Evil Twin, The Girl, and The Nephew headed home.

Mom and I decided to just stare at walls for a few hours… because lots of people + introverts = brain 404.

— 7 —

December 27. The kidlet and I were invited to go to my fairy godmother’s house for lunch with my parents, but I decided to skip it because her house isn’t Daniel-friendly and I needed a day of quiet in between two doctor days. (We had his ADHD appointment yesterday morning with his regular pediatrician and tomorrow is sleep medicine in Bellevue.) We got me coffee, wrote thank-you notes, went to the grocery store, and had a chill day. No regrets on skipping lunch at all!

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: G-Tube Questions Edition

7 Quick Takes

Daniel has had his G-tube for four months now, so I thought I would answer some of the questions I have gotten from people about it.

— 1 —

How easy is it to change the tube? I have only done one change (November 9th, three months post-surgery), and I had a nurse giving me instructions. Having said that, it took maybe 5 minutes at most. It is held in place with a balloon under the skin that has 6 ml of water in it. To change it, we draw the water out with a syringe, pull the tube out, put a new tube in (that has been lubricated), and then refill the balloon with 6 ml of new water. Insurance only pays for four tubes per year, so this is a quarterly occurrence at most.

— 2 —

What does it look like? This is the closed version.

Daniel's G-tube

This is open:

Daniel's G-tube open.

This is with the feeding extension in place:

Daniel's G-tube with the feeding extension in place.

— 3 —

Does it gross you out to have to work with it? Not really. After 9 1/2 years of being Daniel’s mom, I’m used to bodily fluids. The only really gross part (for me, at least) is when scabby material builds up around it (stomach contents and stuff), and scabs don’t freak me out. Even if it did gross me out, I’d have to suck it up because I’m his parent and have to take care of him.

— 4 —

Do your parents help at all? Mom helps me by holding his hands when I’m having to put ointment on it or when I have to clean around the opening on his abdomen, but I do everything else otherwise. From about Day 2 onward, I had to do feedings in the hospital with nurses watching and helping if needed, so I’m used to it and maybe have to interact with the tube for 30 seconds per feeding.

If I were to know that I would be gone for a couple days for surgery or something, Mom would learn how to do stuff but her preference is that he would take his calories by mouth. She’d probably give him milk with heavy whipping cream in it a couple times a day and whatever else he wanted to eat. (He likes strong cheeses like Swiss or sharp cheddar.)

— 5 —

Does he object to you working with it? He doesn’t like having it manipulated too much (he’s non-verbal so I don’t know if it’s painful or if it’s a weird sensation), but he’s fine with me attaching the feeding extension to it. Cleaning around it is probably not comfortable, but he’s getting better about it.

— 6 —

What do you give him through his tube? There are parents who blend their own foods and places online where you can buy blenderized diet stuff, but I stick to the Boost Kids Essentials 1.5 stuff we were given in the hospital. Insurance pays for everything (his feed bags, feeding extensions, syringes, formula, etc.) so I just call the Home Health department at Seattle Children’s Hospital when I need more of something. You can get the formula on Amazon.Com as well and a case of it (27 juice boxes) costs around $60.

If I have to, I can also give him medication through his tube. The only medication of his that doesn’t work that way is his Adderall ER which has to be given by mouth. (The beads in the capsule can’t be pulverized and the capsule is what does the extended release.) Otherwise, I use a syringe for liquid meds and crush pills up to mix in water to give with the syringe. There’s even a special port on the feeding extension for medication.

— 7 —

How does the food get into the tube? Some people do syringe feeds, and others use gravity bags (the bag hangs above the opening and you control the droplet rate, letting gravity do the work). Seattle Children’s Hospital has a pump that we rent on a monthly basis (insurance deals with them directly so I have no idea what the rent is per month), and we use that. It’s not complicated to use, and I had to learn how to use it without problems before they discharged us from the hospital. (Home Health came and worked with me for an hour before the first hands-on feeding I did.) The formula gets poured into a bolus (the plastic IV bag) and the particular feed bag we use is manufactured for the pump, so it has some special tubing attached that fits into the pump. I can prime it with my fingers if I have to (and do a little bit that way to get the air out of the bolus), but I usually just hold down the prime button on the pump to get it all the way through the tubing before I attach it to Daniel.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.