7 Quick Takes: Live PD Edition

7 Quick Takes

— 1 —

Live PD. I have an addiction to cop shows and some friends turned me on to Live PD. My parents roll their eyes at it, but it keeps me entertained.

— 2 —

Answering G-tube questions. Reader mbmom11 left me the following feedback:

I’d be interested. I can’t imagine how it works to get a non-cooperative kiddo to sit still for a feed. And if the kiddo feels better after having been on feeds for a few days. Thank you for sharing your experience!

This is an easy answer: Daniel doesn’t mind feeds and he doesn’t have to sit still for more than one minute while I get him hooked up. The feeding pump and bolus fit in a small backpack so as long as he’s careful about the tube staying connected, he can do quite a bit while the feed is going on. Usually, we are on my bed and he is playing with his tablet.

I’ll get an entry showing the step-by-step process done one of these days.

— 3 —

Check-up. We had a bunch of check-ups and a feeding therapy appointment in Seattle on Tuesday and Wednesday. The good news is that Daniel gained more than they were hoping for, so they’ve cut the number of feedings per day from 3 to 2. This makes my life SOOOOOO much easier.

— 4 —

Minion update. My little black monster is getting bigger and being my snuggle buddy at night as well as when he’s not in berserker mode. I keep some empty reusable shopping bags in my room for him to attack and sleep in. Occasionally, he’ll be asleep in one with just his long black tail sticking out.

My mom keeps commenting that his tail is 3 inches too long and his ears are too big. I keep reminding her that he uses his tail for balance when he jumps from the table to the counter.

— 5 —

Health System Portals. My local health system has an Internet portal that can be used to email doctors, send in prescription refill requests, etc. It’s a wonderful thing because I can actually have conversations with my health providers over it and it means that there is a record of communication.

When we were at Seattle Children’s this past week, they mentioned that they had one and I just about jumped for joy. It is going to be so helpful to not have to play message tag with providers there, and I think this will be useful for autism and g-tube stuff this fall.

— 6 —

Language-learning websites. I just want to highly recommend Duolingo again if you want to learn a language. I’m loving the site for my Spanish studies this summer, I’m using to review my French, and I’m even dusting off my Hebrew! (Pretty sure this is going to work better than my Hebrew class in seminary did!) I can’t wait for their Arabic course to hatch!

— 7 —

Tetelestai. A prayer for these days…

Into your hands, O merciful Savior, we commend your servant, John McCain. Acknowledge, we humbly beseech you, a sheep of your own fold, a lamb of your own flock, a sinner of your own redeeming. Receive him into the arms of your mercy, into the blessed rest of everlasting peace, and into the glorious company of the saints in light. Amen.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: Feeding Tube Edition

7 Quick Takes

— 1 —

Fun with science. This morning, I was hurriedly prepping Daniel’s morning feed and forgot to take the plastic tip off the tubing while I was priming it. The pressure from the feeding pump shot it across the kitchen at my dad. Thankfully, he was amused.

— 2 —

My “helper”. Minion likes to supervise the prep process… sitting next to the parts while I’m prepping them. Did I mention that I do the prep on the kitchen table and that we have a “no kittens on the table” policy? Yep… totally enforced. A step in my prep that gets repeated frequently is “remove the kitten from the work area” and the kitten is thankfully small enough that I can lift him with one hand. (Currently, the little monster is at my feet.)

— 3 —

Lenten meal idea. This looks pretty amazing.

— 4 —

Black Cat Appreciation Day. Black Cat Appreciation Day is today. Minion is, unfortunately, feeling unappreciated because he’s in my room for “reflection time” because he was beating up Jethro. Sorry Little Panther, we don’t want another vet bill for an abscess on Jethro. Not to mention, he’d have to wear an Elizabethan collar and we would laugh at him.

— 5 —

To my Catholic readers. I know some of you are really struggling, especially since some of you know the priests that have been named. I’m keeping you in my prayers.

— 6 —

Done. I just submitted my last assignment for my summer class. Given that I currently have 100% in the class, I’m happy as long as I get a 50% or higher on the assignment so that I end up with a flat A. (The college doesn’t do A-plusses.) I mean, having a solid 100% in the class would be an ego booster, but I’m happy as long as I keep my 3.99 GPA.

— 7 —

Another blog. I’m putting a blog together for G-tube things. Would anyone like to see what a feeding entails? Let me know.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

The Simple Woman’s Daybook: August 14, 2018

For Today… August 14, 2018

Simple Woman's Daybook

Looking out my window… dark. It’s late and I’m fighting insomnia.

I am thinking… about Daniel’s g-tube, the situation going on with my church, and the fact that I’m hungry.

I am thankful… for so many things:

  • Daniel’s g-tube surgery going well
  • The amount of support I got at Seattle Children’s as a parent
  • That my kiddo wasn’t the sickest one in the unit
  • Being home in my own bed with clean sheets and clean jammies
  • Daniel’s tube feedings going well today/yesterday
  • My silly black monster who is berserking around my room and bouncing off the walls

One of my favorite things… the softness of Minion’s fur.

I am wearing… jammies.

I am creating… a blog to talk about g-tube adventures

I am listening to… parts of Fauré’s Requiem that I sang 15 years ago with St. Paul’s choir.

I am hoping… all of the kiddo’s feeds go well tomorrow.

I am learning… how to ensure the kiddo gets his full feed every time.

In my kitchen… I did a baked potato tonight that was lovely.

In the school room… Daniel goes back to school the Wednesday after Labor Day.

Post Script… something on depression, worship, and liturgy from a former colleague of Jon’s.

Shared Quote… “I’m no longer a slave to fear. I am a child of God.” — No Longer Slaves from Bethel Music.

A moment from my day… this offering from the late Rich Mullins.

Hosted by The Simple Woman.

The Simple Woman’s Daybook: August 6, 2018

For Today… August 6, 2018

Simple Woman's Daybook

Looking out my window… sunny. It’s in the 80’s and I’m in my dark room with the shades drawn to cool things down.

I am thinking… about Daniel’s G-tube surgery on Wednesday morning.

I am thankful… for my favorite vet happening to be at the clinic today for a staff meeting and crashing Minion’s appointment with my other favorite vet. It was wonderful watching Dr. Fischer feeding Greenies to my little demon one by one out of her hand while Dr. Matt examined him and did the shots. (I cannot say enough positive things about Chuckanut Valley Veterinary Clinic. They caught Jethro’s thyroid tumors in time to treat them, gave Homer another week of life, and love my little black monster so much that he has groupies when he comes in for vet visits.)

One of my favorite things… my black beast. I’ll miss him while I’m down at Seattle Children’s with Daniel.

I am wearing… jammies. Clothes today were a charcoal shirt from Old Navy (I have three) and jeans capris from Kohl’s. I have such a short inseam that my capris are more like clam diggers on me. #shortpeopleproblems

I am creating… a packing list for the hospital.

I am reading… Inspired: Slaying Giants, Walking on Water, and Loving the Bible Again by Rachel Held Evans

I am hoping… all goes well with Daniel’s surgery on Wednesday.

I am learning… all about G-tubes.

In my kitchen… I had a turkey florentine meatball from Haggen for dinner tonight.

In the school room… one month until school starts. Daniel can’t wait.

Post Script… the page for a US agent for International Pen Friends is here. I’ve been a member for close to 30 years and I cannot recommend them highly enough for anyone who wants to find their kids a pen pal or who wants to find one for themselves.

Shared Quote… “The Psalms are, in a sense, God’s way of holding space for us. They invite us to rejoice, wrestle, cry, complain, offer thanks, and shout obscenities before our Maker without self-consciousness and without fear.” ? Rachel Held Evans, Inspired: Slaying Giants, Walking on Water, and Loving the Bible Again

A moment from my day… One of my favorite choirs doing one of my favorite Bach pieces.

Hosted by The Simple Woman.

The Simple Woman’s Daybook: July 22, 2018

For Today… July 22, 2018

Simple Woman's Daybook

Looking out my window… sunny and nice.

I am thinking… about various things going on in my parish.

I am thankful… that my Kohl’s order has arrived. I was getting low on pants that actually fit me that are cool enough for the summer.

One of my favorite things… quiet.

I am wearing… an olive green shirt and navy capris, which are actually pants-length on me. #shortpeopleproblems

I am creating… cover letters.

I am listening to… Daniel playing tablet.

I am hoping… Minion calms down a bit. He’s currently attacking Jethro playfully and I think he might get brought to my room for time-out.

I am learning… how to write a good cover letter.

In my kitchen… family dinner tonight so I’m about to go out with Daniel to get some pie from my favorite farm store.

In the school room… Daniel is enjoying ESY.

Post Script… a friend asked for safe websites to find pen pals. I’ve been a member of IPF for years and I also found this listing.

Shared Quote… “Dignified or not, believable or not, ours is a God perpetually on bended knee, doing everything it takes to convince stubborn and petulant children that they are seen and loved. It is no more beneath God to speak to us using poetry, proverb, letters, and legend than it is for a mother to read storybooks to her daughter at bedtime. This is who God is. This is what God does.” — Inspired: Slaying Giants, Walking on Water, and Loving the Bible Again by Rachel Held Evans

Hosted by The Simple Woman.

7 Quick Takes: Cat on a Window Screen Edition

7 Quick Takes

— 1 —

Let the blogger cage fight begin! Bonnie is doing the Sheenazing Awards again this year after a hiatus of several years and is taking nominations until July 21st.

— 2 —

Sigh… I learned a new thing last night: my window screen cannot sustain the weight of a 4 lb kitten. *glares at Minion*

— 3 —

This explains a lot. Arabic has been irritating me and this is probably why. I’m also not loving Memrise so I will probably wait until the course on Duolingo is done being developed.

— 4 —

WANT! Mint chocolate is one of my weaknesses, so these are on my WANT(!!!) List.

— 5 —

Daniel update. His upper G-I x-ray came back normal so next on the agenda will be the nutrition appointment on the 23rd and surgeon consult/pre-anesthesia appointment on the 24th.

— 6 —

For historical clothing lovers… I recommend this YouTube playlist.

— 7 —

Whoa. This is amazing.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: I Need A Nap Badly Edition

7 Quick Takes

— 1 —

Seattle Children’s Appointment #1. I’ve touched in the last 6 weeks on Daniel deciding to stop eating. Well… he decided to start puking up his meds as well. This was not a medicine reaction but a behavioral one (gotta love autism!) and to keep from having to clean carpets nightly or mop floors twice a day, we had to start limiting what he could have several hours before meds were taken. That drops calories significantly and he had lost a couple pounds by Monday when we got to the hospital for the nutritionist appointment. R, his nutritionist, had kittens and went off to consult with one of the gastroenterologists in clinic about whether or not to admit him. My mom was watching me in order to see if I was about to have a panic attack. I was just sitting there mentally calculating what I needed her to bring back down to me from home. (Seattle Children’s is a good hour away without traffic and there would have been some hideous rush hour traffic involved.)

The good news: the gastroenterologist declined to admit him and we were sent home with our marching orders and warnings of what refeeding syndrome looks like. Wheeeeeeeeeeeeeeeeee!!! Our G-I PA of Awesomeness has gotten us an expedited pre-anesthesia appointment/general surgery consult for a G-tube and we had imaging stuff done for that today.

— 2 —

ESY. ESY (extended school year — it’s summer school for kiddos with special needs) started this week. Daniel had to miss Thursday for his audiology appointment and I felt bad about that because he LOVESLOVESLOVES school.

— 3 —

Minion update. Minion continues to be completely and utterly psycho in a kittenish way. He likes to climb chairs, walk across tables, sit on laptops, and Mom has even found him in her bathroom cabinet! (The Greenies are kept in there.) He even decided to void his adoption contract and follow me outside yesterday. (Part of his adoption contract was that he would remain an indoor kitty.) Apparently, he forgot to read that clause in the contract and decided to take a stroll through the dahlias and the grass. Mama is allergic to grass and black kittens (oops!) so he had to be bathed to keep me from turning into a giant hive. (We’ve known about the cat allergy as long as we’ve known that I have a touch allergy to grass. I get shots for both weekly and my previous allergist even used to ask about how my cats were doing.)

Beastling had a vet appointment this morning and our vet techs and the vet of the day were happy to see him again. (Apparently, they used to take him out of his enclosure and play with him when he was at the vet waiting to be adopted.) He is now almost 4 lbs of black furry insanity and doing well. He got two shots and we’re just watching him super closely for a reaction.

— 4 —

Summer class update. I had my resume rough draft due this week in addition to an assignment where we were coming up with phrases to describe aspects of things employers want. I was sweating both assignments and just got the grades back: 100% on each of them. I was stunned! Along with my perfect score on my assignment from last week, I have 100% in the class.

— 5 —

Seattle Children’s Appointment #2 This one was for Audiology and we had to be at Seattle Children’s at 9… which meant leaving the house at 6:45 a.m. so that we had time to grab coffee. (Rush hour in Seattle is worse than any traffic I’ve seen in LA, the Bay Area, or Sacramento.) The audiologist had an assistant who went in and helped with Daniel. I had to go in and sit with him after a while because he started getting teary in the anechoic chamber, but he was able to make it through the hearing test. He did show mild hearing loss in one ear and mild/moderate in the other. These results are going to enable us to get him new hearing aids this fall. Mom and I were stunned by how well he did — it was like, “who is this kid?!?!?!?”

— 6 —

Seattle Children’s Appointment #3 This was an upper G-I x-ray to rule out any issues keeping my kiddo from eating. It was another morning where we had to be at Seattle Children’s at 9 and it was also one of those times where my kid had to be NPO after midnight so he didn’t get his ADHD meds until AFTER the x-ray. Oyyyyyy…

Between my mom and the radiology tech holding him in place, the Child Life person showing him Daniel Tiger on an iPad, and me shooting contrast into his mouth, we got it done. Not something I want to repeat any time soon and he’s been out-of-sorts for two days because of the delayed ADHD meds. Gah.

— 7 —

Duolingo update. I’m loving Duolingo and the way it is set up as it is making me feel pretty confident in my Spanish. Because I’m a language geek, I’ve also added French (well… reviewing it) and Irish. (Irish actually makes sense structurally from a French perspective.) I’m trying Arabic through Memrise and not liking it as much.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.