The Simple Woman’s Daybook: September 25, 2018

For Today… September 25, 2018

Simple Woman's Daybook

Looking out my window… sunny.

I am thinking… about the changes I’m having to make to my degree plan based on the appointment with the Autism Center for Daniel yesterday.

I am thankful… to not be doing my Final Project for my degree(s) this quarter.

One of my favorite things… Sleepy black kitties. 🙂

I am wearing…a tie-dyed shirt and black capris.

I am creating… child support case paperwork.

I am listening to… Daniel playing on his tablet.

I am hoping… to get the child support order mess fixed quickly.

I am learning… about how to file all the necessary papers in Washington.

In my kitchen… heated up some chicken shu mai from Trader Joe’s.

In the school room… Daniel loves school.

Post Script… this is a useful reddit thread.

Shared Quote… “Lighthouses don’t go running all over an island looking for boats to save; They just stand there shining.” Anne Lamott

Hosted by The Simple Woman.

7 Quick Takes: Insert A Witty Title Here Edition

7 Quick Takes

— 1 —

Nostalgia. How many of you had a Caboodles cosmetic case when you were little? Apparently, they’re selling vintage ones now. I’d get one, but I never wear make-up!

— 2 —

NaNo update. I’m in the world-building part of NaNoWriMo prep. It’s harder this year because I don’t have anyone I want to kill… too badly. (There are always some people who have died multiple times or who have been used as examples multiple times.) I’m having to use various name generators to come up with people and to give them characteristics of people I know.

And as always, I’m willing to kill you off creatively for a charity donation. This year’s charity: Heifer International. Leave a comment or email me if you’re interested.

— 3 —

Something new. I got an email from my new boss in the tutoring program at school and it included her pronouns in her email signature. This is the first time I have seen that and I thought it was interesting. (I’m a cis female so not having to think about that is privilege on my part, I guess.)

— 4 —

Duuuuuude… I kind of want this.

— 5 —

Because RBG. I need a dissent collar like nobody’s business.

— 6 —

Good news. Per Kelly, FULTON IS HOME! Details here.

— 7 —

One more NaNo thing. If you have a kid who loves to write, consider checking out the Young Writers Project. I would have loved to have something like it as a kid, and I joyfully contribute to fund it every time I do NaNo. (This is my 8th time.)

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

The Simple Woman’s Daybook: September 18, 2018

For Today… September 18, 2018

Simple Woman's Daybook

Looking out my window… sunny and quite nice. It’s around 60F here and I’m liking it.

I am thinking… about the learning objectives I have to write for my internship this fall… and finding that I am at a loss for words. *sighs*

I am thankful… for two quiet days with Daniel in school. I’ve slept a lot and am starting to get the hang of Daniel’s school schedule and fitting the tube feeds in around it.

One of my favorite things… soft little black kittens who have motors like jet engines. 🙂

I am wearing… charcoal grey shirt and jeans “capris” which are more like regular jeans on me! #shortpeopleproblems

I am creating… letters.

I am reading… Inspired by Rachel Held Evans still.

I am hoping… for a peaceful night with Daniel tonight and that I can get dinner before too late. (Thank God for Trader Joe’s!)

I am learning… patience.

In my kitchen… I will probably just heat up frozen food for myself tonight.

In the school room… Daniel is loving being back at school.

Post Script… this is pretty interesting in terms of seeing how Catholicism is the same and different all over the world. (HT: Fr. James Martin, S.J.)

Shared Quote… “The church is not a group of people who believe all the same things; the church is a group of people caught up in the same story, with Jesus at the center.” — Rachel Held Evans

Hosted by The Simple Woman.

The Simple Woman’s Daybook: September 11, 2018

For Today…

Simple Woman's Daybook

Looking out my window… dark. It was sunny today, but I’d be happy with rain again.

I am thinking… about the church mission statements I have been researching for the Vestry.

I am thankful… for the naptime I got today, considering that I’ve been getting up at 6 to medicate my kid and do his morning tube feed.

One of my favorite things… cold drinks. I prefer pretty much everything I drink to be cold year-round.

I am wearing… jammies. Clothes for today were a green shirt and dark wash denim capris.

I am creating… characters, places, and plotlines for my NaNo piece.

I am reading… Inspired: Slaying Giants, Walking on Water, and Loving the Bible Again by Rachel Held Evans. It’s the chapter on Deliverance Stories and I’m enjoying it immensely.

I am hoping… I can get my internship paperwork together sooner than later.

I am learning… how to keep Daniel from puking up his feeds.

In my kitchen… Dad made sauce and pasta from scratch a few nights ago. It was awesome.

In the school room… Daniel is back to school and loving it.

Post Script… This is fun to watch.

Shared Quote… “Of course, the fact that a single biblical text can mean many things doesn’t mean it can mean anything. Slave traders justified the exploitation of black people by claiming the curse on Noah’s son Ham rendered all Africans subhuman. Many Puritans and pioneers appealed to the stories of Joshua’s conquest of Canaan to support attacks on indigenous populations. More recently, I’ve heard Christians shrug off sins committed by American politicians because King David assaulted women too. Anytime the Bible is used to justify the oppression and exploitation of others, we have strayed far from the God who brought the people of Israel out of Egypt, “out of the land of slavery” (Exodus 20:2).” —Rachel Held Evans

A moment from my day… The altar flowers on Sunday in memory of my grandfather whose 100th birthday would have been Thursday. Ich liebe dich, Opa.

The altar with the flowers
A close-up of one bouquet
A close-up of one bouquet

Hosted by The Simple Woman.

7 Quick Takes: Feeding Tube Edition

7 Quick Takes

— 1 —

Fun with science. This morning, I was hurriedly prepping Daniel’s morning feed and forgot to take the plastic tip off the tubing while I was priming it. The pressure from the feeding pump shot it across the kitchen at my dad. Thankfully, he was amused.

— 2 —

My “helper”. Minion likes to supervise the prep process… sitting next to the parts while I’m prepping them. Did I mention that I do the prep on the kitchen table and that we have a “no kittens on the table” policy? Yep… totally enforced. A step in my prep that gets repeated frequently is “remove the kitten from the work area” and the kitten is thankfully small enough that I can lift him with one hand. (Currently, the little monster is at my feet.)

— 3 —

Lenten meal idea. This looks pretty amazing.

— 4 —

Black Cat Appreciation Day. Black Cat Appreciation Day is today. Minion is, unfortunately, feeling unappreciated because he’s in my room for “reflection time” because he was beating up Jethro. Sorry Little Panther, we don’t want another vet bill for an abscess on Jethro. Not to mention, he’d have to wear an Elizabethan collar and we would laugh at him.

— 5 —

To my Catholic readers. I know some of you are really struggling, especially since some of you know the priests that have been named. I’m keeping you in my prayers.

— 6 —

Done. I just submitted my last assignment for my summer class. Given that I currently have 100% in the class, I’m happy as long as I get a 50% or higher on the assignment so that I end up with a flat A. (The college doesn’t do A-plusses.) I mean, having a solid 100% in the class would be an ego booster, but I’m happy as long as I keep my 3.99 GPA.

— 7 —

Another blog. I’m putting a blog together for G-tube things. Would anyone like to see what a feeding entails? Let me know.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

The Simple Woman’s Daybook: August 14, 2018

For Today… August 14, 2018

Simple Woman's Daybook

Looking out my window… dark. It’s late and I’m fighting insomnia.

I am thinking… about Daniel’s g-tube, the situation going on with my church, and the fact that I’m hungry.

I am thankful… for so many things:

  • Daniel’s g-tube surgery going well
  • The amount of support I got at Seattle Children’s as a parent
  • That my kiddo wasn’t the sickest one in the unit
  • Being home in my own bed with clean sheets and clean jammies
  • Daniel’s tube feedings going well today/yesterday
  • My silly black monster who is berserking around my room and bouncing off the walls

One of my favorite things… the softness of Minion’s fur.

I am wearing… jammies.

I am creating… a blog to talk about g-tube adventures

I am listening to… parts of Fauré’s Requiem that I sang 15 years ago with St. Paul’s choir.

I am hoping… all of the kiddo’s feeds go well tomorrow.

I am learning… how to ensure the kiddo gets his full feed every time.

In my kitchen… I did a baked potato tonight that was lovely.

In the school room… Daniel goes back to school the Wednesday after Labor Day.

Post Script… something on depression, worship, and liturgy from a former colleague of Jon’s.

Shared Quote… “I’m no longer a slave to fear. I am a child of God.” — No Longer Slaves from Bethel Music.

A moment from my day… this offering from the late Rich Mullins.

Hosted by The Simple Woman.

7 Quick Takes: Seattle Children’s Hospital Edition

7 Quick Takes

— 1 —

The sitch. For any new readers out there, my son Daniel has food issues related to autism and prematurity and was scaring the pants off of his gastroenterologists and their nutritionist with weight loss and being around 20 lbs underweight. For the sake of making sure he doesn’t go into organ failure, the decision was made to put in a G-tube so that we have a way to get the necessary calories and nutrition into him. (I’ve just distilled close to 4 months of testing and deliberation into a paragraph, so believe me when I say that this was not a minor decision.)

— 2 —

The plan. He was admitted to Seattle Children’s Hospital two weekends ago for nutrition prior to surgery with the plan that they would nourish him inpatient for a week prior to surgery. His gastroenterology MD was positive that an NG tube would be able to stay in and that they could *TOTALLY* get nutrition in that way. I disagreed and got overruled.

Let’s just say I was right and my precious sweetling removed the tube with both hands restrained. We got to stay for another day and a half while they tried to figure out a Plan B. Our attending physician finally looked at what I was getting into him by mouth and said, “Let’s just discharge him and let Jen do this at home.”

(And yes, his gastroenterologist MD did apologize to me. She is classy and I’m less cross with her now.)

— 3 —

Wednesday. Surgery was Wednesday morning and we ended up with a different surgeon than was planned. This is who we were supposed to have. This is who we ended up having because he had the space on his schedule. (For those who don’t want to click the links: We were supposed to have just an awesome general surgeon and ended up with THE FREAKING DIVISION CHIEF FOR TRANSPLANTATION WHO SPEAKS NATIONALLY AND INTERNATIONALLY AT BIG CONFERENCES doing Daniel’s minor procedure.)

Surgery went well (they let me come in and help with him while they were getting him to sleep so I have a lovely selfie of me all suited up!) and we settled into the post-surgery wing.

Anesthesia selfie!

— 4 —

How things are going. My beastling is doing amazingly well and we started doing feeds through the tube yesterday. Yesterday’s nurse started explaining the process and how to do things to me. Today’s nurse is having me do the feeds after training this morning. I have one feed of mine under my belt and will be doing the rest of them with supervision until discharge. He isn’t showing signs of refeeding syndrome so we got to double the feed amount today. If he tolerates tomorrow’s upping, we’ll be discharged on Sunday. Otherwise, we’ll be discharged when we can do all of the feeds without him vomiting them up or having refeeding issues.

We have a bed sitter with us who is making sure he doesn’t remove his IV or the G-tube and he has been good… so far. He did almost have a situation today where he was connected to the feeding pump and he tried to get out of bed which would have taken some tubes out accidentally, but we prevented it.

— 5 —

“Things I love here” take #1 The staff is ALLLLLLLLLL about the kids and families. They support their families really well and have an entire resource center on the 7th floor with washers/dryers, computers, and just about anything parents need when being here.

The doctors and nurses do an amazing job of interacting with the kids. All the residents are here for pediatrics so they are all focused on learning how to work with the kids. Daniel is finally used to doctors again (my deepest thanks to his pediatrician Annalee Paul M.D. at Skagit Regional Clinics for getting him on better terms with doctors checking him out) but I’ve watched the residents talk to Daniel and tell him what they’re going to do before they do it. The nurses are awesome as well. They advocate for us to the doctors and have done a great job of helping me figure out how to work with Daniel’s G-tube and how to use the feeding pump.

— 6 —

“Things I love here” take #2. Security is serious here. EVERY person who walks through the door gets their state-sponsored ID scanned and a badge sticker made that identifies your reason for being there. (The hospital is a huge building with skybridges and one zone of it is the outpatient clinics. Because it is connected, people can get from one place to another and they need to make sure that only certain people can get to certain places.) Parents and caretakers who have inpatient kids have color-coded lanyards with their badge inside of it. If I’m outside Daniel’s room, my badge is required to be on. If I forget it, they will print me a new name badge sticker that is temporary until I get back to the room, but I have to have something identifying me.

It’s incredibly strict, but I love it because people can’t just walk in from the street.

— 7 —

“Things I love here” take #3. I’d be lying if I said I didn’t like having three Starbucks a short walk away. When we were inpatient a few weeks ago, the elevator to one of them was next to Daniel’s unit so I could walk down a short hallway and take the elevator down to the 24-hour one next to the ER. I have a little more of a walk to the closer one here, but I love being able to get my coffee fix without having to go outside or change out of my jammies!

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.