7 Quick Takes: CPAP FAQ, Ranting at the School Nurse, and Other Merriment

7 Quick Takes

— 1 —

Ranting at the school nurse. Lest this be added to the “reasons not to homeschool send your kids to public school EVER” list by my current troll reader, I enjoy a really good relationship with Daniel’s school overall, and this problem wouldn’t exist if the school district hadn’t cut the funding for school nurses to the point that they are covering 3 schools on average. (Teachers at this school nurse’s other campuses and at Daniel’s elementary school has explained that this individual is “special.”)

School Nurse,

For some odd reason, you couldn’t be bothered to actually get my young prince’s individual health plan written/signed in SEPTEMBER, so I now have to remind you again that the only information you need on his G-tube is DON’T [EXPLETIVE] TOUCH IT, per the request of the General Surgery nurses at Seattle Children’s Hospital because they don’t want the integrity of the stoma compromised. That sucker is being held in place by a water-filled balloon UNDER HIS SKIN, and it is not coming out without that bubble being drained or someone pulling pretty darn hard on it with needle-nosed pliers.

If it does for some odd reason fall out, CALL ME DIRECTLY ON MY CELL PHONE AT 867-5309 (not at the first random number you see) as my sweet babu will probably be in a buttload of pain (again, that thing is NOT falling out on its own) and there will probably be damage to the stoma that requires an ER visit to Seattle Children’s. If you can’t reach me, call my parents (whose numbers you have) and they will get in touch with me PDQ. Again, DON’T [EXPLETIVE] TOUCH MY CHILD’S G-TUBE OR YOU WILL BE IN DEEP FECES.

Snuggles,
jen

— 2 —

The back storyregarding the above take. Dumb@$$ School Nurse (“DSN” for short) decided to call the first number their eyes came upon, and it was my parents’ landline. (I live with them, so it’s the back-up number. However, EVERY piece of school paperwork contains the words “call Jen on her cell phone at 867-5309“, and DSN seems to be the only person who has ever ignored that.) Thankfully, I happened to be home, but DSN managed to get my dad first… who was not amused by some random person calling and asking seemingly personal information about my kid. DSN finally explained WHY he was calling, and Dad called me to the phone.

When I picked it up, DSN apologized for “upsetting my husband”.

I rolled my eyes and told him, in a voice dripping with saccharine, that the gruff gentleman who answered the phone was my FATHER, and that he was not amused to get a call from a strange person asking seemingly personal information about his grandson. When I got off the phone (after giving him a bunch of information that he ALREADY HAS in various documents and emails), I told Dad that DSN thought he was my husband. Thankfully, Dad found some humor in THAT, even if I was spitting fire at DSN’s idiocy.

/stomps off to fix the student health plan for my critter AGAIN

— 3 —

CPAP Take #1. Kelly (our hostess with the mostest) asked to see a selfie of me with the CPAP mask on, and I’m obliging because I live to make Kelly happy. 😀

CPAP selfie!

— 4 —

CPAP Take #2. Kelly asked to see my mask, so here it is along with the strapping on it that holds it to my face. (The white things in the bottom corners are the things that fasten the mask to the strapping, and they attach to the mask magnetically.) My nose rests on the top of the mask on top of a hole that allows me to breathe through it. Otherwise, I breathe through my mouth. I opted for the full-face mask instead of the nasal pillows (similar to a nasal cannula but with a fatter base) because I couldn’t breathe well with them in. (They force air into your nose, which works well if you’re a nose breather… which I am not.)

Not shown in the second picture (because I’m dangling the mask from) it is the clear tubing that feeds the hot air into the mask, so I took the third picture to show the mask tubing and how everything is connected. The whitish stuff attached to the mask is rubbery and flexible tubing, and it goes on top of my head. The greyish tubing is a little firmer and what brings the heated moist air pressure into the mask framework. Most masks have the greying tubing coming out of the front. Mine comes out of the tubing on the top of my head.(I apologize for the quality of the pics — I’m taking them on my webcam in not-great light because it’s late at night.) I sleep on my side usually with the greyish tubing trailing behind me. If I’m on my back, it comes out the top of the rubbery thing and trails off my pillow and to my right where my machine is.

CPAP Mask
CPAP Strapping
CPAP Mask Framework

— 5 —

CPAP Take #3. Kelly asked about my machine, so here are some pictures of it. (Our email conversations are FUN! We also both believe in educating people on scary health issues, so I’m happy to answer questions.) Mine is made by ResMed and adjusts the pressure going into my mask automatically. It also has a modem in it which sends data to a website that my doctor, my home health person, and probably the Illuminati can see. The rule is that I have to be using my CPAP for at least 4 hours a day in order for insurance to continue to pay for it (it’s usually 8 hours for me and up to 12 if I go back to sleep once Daniel is off to school).

Here are the front and back. (I blacked out any personally-identifying information.) The clear thing at the right side is a removable reservoir where I put distilled water to make the air moist. I clean it out and refill it every 2-3 days. The tubing that brings the air to my mask attaches in the back.

The front of the machine.
The back of the machine.

— 6 —

CPAP Take #4. Kelly asked what it feels like to have it on. It was a little weird at first, and I’m really glad they had me try out face masks in the hospital before they attached all the wires to me during my alien abduction sleep study so that I would know which one felt most comfortable for me. When I put it on, I breathe into it to start it (provided it’s plugged in) and it feels warm and moist around my face. It’s been good because using it forces me to breathe deeply, and that deep breathing helps me get sleepy quicker. I tend to sleep better and deeper, which helps with the daytime sleepiness.

It doesn’t make an annoying sound — it’s designed to be white noise. And yes, my little ball of black fury has investigated it and rolled his panther cub eyes because Mama bats him back from it every time he tries to eat the tubing. #housepantherproblems #meanmama #mustbiteallthethings

— 7 —

The Superb Owl. (Yes, that spelling was intentional.) I honestly don’t know who to root for this weekend. I can’t root for the Lambs Rams because they’re from LA, and I hate on southern California teams as a moral rule. I can’t root for the Patriots because I take great joy in seeing Tom Brady lose. (The 49’ers of the 1980’s and early 1990’s are the best football team in history, y’all. C/S.)

I’ll probably just go on SuperBowl.Com and watch the commercials or something. I mean, isn’t the Superb Owl is just fabulous commercials with annoying interludes of football and obnoxious Halftime entertainment? #stateyourunpopularopinion

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.