{"id":3130,"date":"2011-11-16T23:22:14","date_gmt":"2011-11-17T07:22:14","guid":{"rendered":"http:\/\/grace-filled.net\/?p=3130"},"modified":"2011-11-16T23:22:14","modified_gmt":"2011-11-17T07:22:14","slug":"you-know-youre-the-mom-of-a-developmentally-delayed-kid","status":"publish","type":"post","link":"http:\/\/grace-filled.net\/?p=3130","title":{"rendered":"You Know You&#8217;re The Mom of A Developmentally Delayed Kid&#8230;"},"content":{"rendered":"<p>Daniel had a pediatrics appointment today.  After it was over, I seriously felt like I should be putting together a &#8220;You Know You&#8217;re A _____ If&#8221; list.  So without further adieu&#8230;<\/p>\n<p><strong>You know you&#8217;re the mother of a developmentally delayed kid when&#8230;<\/strong><\/p>\n<p>[+] You rejoice because your kid is at the 25th percentile for height\/weight\/head circumference because they can finally plot the points on their growth chart.<br \/>\n[+] You can succinctly describe your horrendous pregnancy and birth experience in under 10 words but most of them have three or more syllables.<br \/>\n[+] The sight of your kid walking at 2.5 years old makes their pediatrician clap with joy because, dude, this is HUGE.<br \/>\n[+] You aren&#8217;t fazed by your kid&#8217;s abysmal MRI results because you got the report six months ago and your child&#8217;s physical therapist from <a href=\"http:\/\/www.easterseals.com\/site\/PageServer?pagename=ntl_cdc_main\" title=\"Easter Seals\">Easter Seals<\/a> talked you off the (figurative) ledge at that point.<br \/>\n[+] Your child&#8217;s pediatrician tells you that your child&#8217;s brain has many abnormalities (see &#8220;MRI results above&#8221;) and will never be like the brains of other kids their age.  Your response:  &#8220;We&#8217;ll see&#8221; while thinking to yourself that your child has a habit of defying predictions like these.<br \/>\n[+] Those abysmal MRI results get you a consult to every specialist you ask to see.<br \/>\n[+] Your child has <a href=\"http:\/\/showerheadsandhairdryers.blogspot.com\/2011\/11\/managing-millions-of-meds.html\" title=\"Millions of Meds\">more specialists in their lives than most hospitals have on staff<\/a>.  (Josh&#8217;s mother Susan is my former <a href=\"http:\/\/intervarsity.org\" title=\"Intervarsity\">IV<\/a> area director.)<\/p>\n<p>Now for the ones that don&#8217;t apply to the peds appointment today!<\/p>\n<p>[+] You know that you will cry when your child turns three and (in California) you lose your <a href=\"http:\/\/www.easterseals.com\/site\/PageServer?pagename=ntl_cdc_main\" title=\"Easter Seals\">Easter Seals<\/a> therapists.  (Under the Lanterman Act in California, your child becomes the problem of their local school district once they turn three.)<br \/>\n[+] All your child&#8217;s developmental milestones are VERY BIG DEALS!!!!!!!<br \/>\n[+] You have stories from the NICU, PICU, and Peds wards of the hospital.<br \/>\n[+] You&#8217;ve had to explain to people why your kid is not waving at them, why your kid does not need a children&#8217;s menu, or why your kid isn&#8217;t doing ____ when other kids their age can do it.<br \/>\n[+] You finally just learned how to (joyfully) suppress the urge to say &#8220;Bite me!&#8221; to the person who asks the third question on that last item.  (OK&#8230; again this is probably just me.)<br \/>\n[+] It makes you happy when people acknowledge your child\/have a normal conversation with them instead of talking over them.<br \/>\n[+] You read the blogs of <a href=\"http:\/\/showerheadsandhairdryers.blogspot.com\" title=\"Showerheads and Hair Dryers\">other<\/a> <a href=\"http:\/\/kathleenbasi.com\/blog\/\" title=\"so much to say... so little time...\">mothers<\/a> who have kids with developmental delays\/Down&#8217;s Syndrome\/autism spectrum disorders and can identify with their posts.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Daniel had a pediatrics appointment today. After it was over, I seriously felt like I should be putting together a &#8220;You Know You&#8217;re A _____ If&#8221; list. So without further adieu&#8230; You know you&#8217;re the mother of a developmentally delayed &hellip; <a href=\"http:\/\/grace-filled.net\/?p=3130\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1,37,2,25],"tags":[],"class_list":["post-3130","post","type-post","status-publish","format-standard","hentry","category-daily-life","category-daniel","category-faith","category-health"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p38xoO-Ou","jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/3130","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=3130"}],"version-history":[{"count":1,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/3130\/revisions"}],"predecessor-version":[{"id":3131,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/3130\/revisions\/3131"}],"wp:attachment":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=3130"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=3130"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=3130"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}