{"id":7970,"date":"2016-10-11T23:43:03","date_gmt":"2016-10-12T06:43:03","guid":{"rendered":"http:\/\/grace-filled.net\/?p=7970"},"modified":"2016-10-12T00:43:21","modified_gmt":"2016-10-12T07:43:21","slug":"31-days-of-parenting-kiddos-with-special-needs-you-know-youre-the-mom-of-a-developmentally-delayed-kid","status":"publish","type":"post","link":"http:\/\/grace-filled.net\/?p=7970","title":{"rendered":"31 Days of Parenting Kiddos with Special Needs: You Know You&#8217;re The Mom of A Developmentally Delayed Kid&#8230;"},"content":{"rendered":"<p><center><img decoding=\"async\" src=\"http:\/\/grace-filled.net\/specialkids.jpg\" alt=\"31 Days of Parenting Kiddos with Special Needs\" \/><\/center><\/p>\n<p>There is a giveaway from the lovely people at <a href=\"https:\/\/www.dayspring.com\/\">Dayspring<\/a>. They really want to give someone a $100 gift card.  The <a href=\"http:\/\/rafflecopter.com\">Rafflecopter<\/a> for the giveaway is below:<\/p>\n<p><a class=\"rcptr\" href=\"http:\/\/www.rafflecopter.com\/rafl\/display\/9a3d8db739\/\" rel=\"nofollow\" data-raflid=\"9a3d8db739\" data-theme=\"classic\" data-template=\"\" id=\"rcwidget_hvjf6puh\">a Rafflecopter giveaway<\/a><br \/>\n<script src=\"https:\/\/widget-prime.rafflecopter.com\/launch.js\"><\/script><\/p>\n<p>I&#8217;m in the midst of a week where I have a boatload of work due on Thursday and Friday so there might be &#8220;cheater&#8221; posts put up by me in the next couple days.  Today&#8217;s is <a href=\"http:\/\/grace-filled.net\/?p=3130\">one that I wrote in November 2011<\/a> that applies to what I&#8217;m writing about this month.  Enjoy!<\/p>\n<blockquote><p>Daniel had a pediatrics appointment today.  After it was over, I seriously felt like I should be putting together a &#8220;You Know You&#8217;re A _____ If&#8221; list.  So without further adieu&#8230;<\/p>\n<p><strong>You know you&#8217;re the mother of a developmentally delayed kid when&#8230;<\/strong><\/p>\n<p>[+] You rejoice because your kid is at the 25th percentile for height\/weight\/head circumference because they can finally plot the points on their growth chart.<br \/>\n[+] You can succinctly describe your horrendous pregnancy and birth experience in under 10 words but most of them have three or more syllables.<br \/>\n[+] The sight of your kid walking at 2.5 years old makes their pediatrician clap with joy because, dude, this is HUGE.<br \/>\n[+] You aren&#8217;t fazed by your kid&#8217;s abysmal MRI results because you got the report six months ago and your child&#8217;s physical therapist from <a href=\"http:\/\/www.easterseals.com\/site\/PageServer?pagename=ntl_cdc_main\" title=\"Easter Seals\">Easter Seals<\/a> talked you off the (figurative) ledge at that point.<br \/>\n[+] Your child&#8217;s pediatrician tells you that your child&#8217;s brain has many abnormalities (see &#8220;MRI results above&#8221;) and will never be like the brains of other kids their age.  Your response:  &#8220;We&#8217;ll see&#8221; while thinking to yourself that your child has a habit of defying predictions like these.<br \/>\n[+] Those abysmal MRI results get you a consult to every specialist you ask to see.<br \/>\n[+] Your child has <a href=\"http:\/\/showerheadsandhairdryers.blogspot.com\/2011\/11\/managing-millions-of-meds.html\" title=\"Millions of Meds\">more specialists in their lives than most hospitals have on staff<\/a>.  (Josh&#8217;s mother Susan is my former <a href=\"http:\/\/intervarsity.org\" title=\"Intervarsity\">IV<\/a> area director.)<\/p>\n<p>Now for the ones that don&#8217;t apply to the peds appointment today!<\/p>\n<p>[+] You know that you will cry when your child turns three and (in California) you lose your <a href=\"http:\/\/www.easterseals.com\/site\/PageServer?pagename=ntl_cdc_main\" title=\"Easter Seals\">Easter Seals<\/a> therapists.  (Under the Lanterman Act in California, your child becomes the problem of their local school district once they turn three.)<br \/>\n[+] All your child&#8217;s developmental milestones are VERY BIG DEALS!!!!!!!<br \/>\n[+] You have stories from the NICU, PICU, and Peds wards of the hospital.<br \/>\n[+] You&#8217;ve had to explain to people why your kid is not waving at them, why your kid does not need a children&#8217;s menu, or why your kid isn&#8217;t doing ____ when other kids their age can do it.<br \/>\n[+] You finally just learned how to (joyfully) suppress the urge to say &#8220;Bite me!&#8221; to the person who asks the third question on that last item.  (OK&#8230; again this is probably just me.)<br \/>\n[+] It makes you happy when people acknowledge your child\/have a normal conversation with them instead of talking over them.<br \/>\n[+] You read the blogs of <a href=\"http:\/\/showerheadsandhairdryers.blogspot.com\" title=\"Showerheads and Hair Dryers\">other<\/a> <a href=\"http:\/\/kathleenbasi.com\/blog\/\" title=\"so much to say... so little time...\">mothers<\/a> who have kids with developmental delays\/Down&#8217;s Syndrome\/autism spectrum disorders and can identify with their posts.<\/p><\/blockquote>\n","protected":false},"excerpt":{"rendered":"<p>There is a giveaway from the lovely people at Dayspring. They really want to give someone a $100 gift card. The Rafflecopter for the giveaway is below: a Rafflecopter giveaway I&#8217;m in the midst of a week where I have &hellip; <a href=\"http:\/\/grace-filled.net\/?p=7970\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1,37,2,70,17,42,67],"tags":[],"class_list":["post-7970","post","type-post","status-publish","format-standard","hentry","category-daily-life","category-daniel","category-faith","category-parenting-kids-with-special-needs","category-personal-issues","category-the-a-word","category-write-31-days"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p38xoO-24y","jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/7970","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=7970"}],"version-history":[{"count":1,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/7970\/revisions"}],"predecessor-version":[{"id":7971,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/7970\/revisions\/7971"}],"wp:attachment":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=7970"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=7970"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=7970"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}