{"id":8922,"date":"2018-05-27T02:21:43","date_gmt":"2018-05-27T09:21:43","guid":{"rendered":"http:\/\/grace-filled.net\/?p=8922"},"modified":"2018-05-27T02:24:57","modified_gmt":"2018-05-27T09:24:57","slug":"7-quick-takes-46","status":"publish","type":"post","link":"http:\/\/grace-filled.net\/?p=8922","title":{"rendered":"7 Quick Takes: Disordered Eating Edition"},"content":{"rendered":"<p><center><img decoding=\"async\" src=\"http:\/\/grace-filled.net\/7qt.jpg\" alt=\"7 Quick Takes\" \/><\/center><\/p>\n<p style=\"text-align: center; font-size: 130%;\"><a name=\"qt1\"><\/a><strong><a href=\"#qt1\" style=\"color: black; text-decoration: none;\">&#8212; 1 &#8212;<\/a><\/strong><\/p>\n<p><strong>Music take #1.<\/strong> This song came on randomly while I was doing my Word II homework in one of the computer labs on Tuesday.<\/p>\n<div style=\"text-align:center;margin-top:15px;margin-bottom:15px;\"><iframe loading=\"lazy\" title=\"Zach Williams - Fear Is a Liar (Official Music Video)\" width=\"584\" height=\"329\" src=\"https:\/\/www.youtube.com\/embed\/1srs1YoTVzs?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<p style=\"text-align: center; font-size: 130%;\"><a name=\"qt2\"><\/a><strong><a href=\"#qt2\" style=\"color: black; text-decoration: none;\">&#8212; 2 &#8212;<\/a><\/strong><\/p>\n<p><strong>Music take #2.<\/strong> <a href=\"https:\/\/loreenamckennitt.com\">Loreena McKennitt&#8217;s<\/a> newest album came out this month and it is excellent. I&#8217;ve listened to it while working on homework and we listened to it on the way down to Seattle Children&#8217;s yesterday.<\/p>\n<p>A song for this weekend:<\/p>\n<div style=\"text-align:center;margin-top:15px;margin-bottom:15px;\"><iframe loading=\"lazy\" title=\"RCAF video production   Loreena McKennitt   Breaking of the Sword   Full Length Single\" width=\"584\" height=\"329\" src=\"https:\/\/www.youtube.com\/embed\/MMXI2F_Xna4?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<p style=\"text-align: center; font-size: 130%;\"><a name=\"qt3\"><\/a><strong><a href=\"#qt3\" style=\"color: black; text-decoration: none;\">&#8212; 3 &#8212;<\/a><\/strong><\/p>\n<p><strong>Background on yesterday.<\/strong> Since getting hooked up with the <a href=\"http:\/\/www.seattlechildrens.org\/clinics-programs\/autism-center\/\">Autism Center at Seattle Children&#8217;s Hospital<\/a> last year, we&#8217;ve been able to get referrals to specialists at <a href=\"http:\/\/www.seattlechildrens.org\">Seattle Children&#8217;s<\/a> outpatient clinics and one of those is gastroenterology. Long story short, the gastroenterologist we saw was concerned about Daniel&#8217;s weight and when he lost a pound between appointments (possibly due to solving a constipation problem), she had kittens. We already had an appointment with the gastroenterology department&#8217;s nutrition staff for last Friday, so she ordered bloodwork to go with it.<\/p>\n<p>We went down there last Friday (the 18th), got blood taken (OMG&#8230; THEIR PHLEBOTOMY TEAM IS AWESOME!!!!), and met with a wonderful nutritionist&#8230; who gave us a week to get kiddo up to 2000 calories per day (at least) or we would be talking about a feeding tube. They gave us samples of a couple different calorie-dense formulas and Daniel chose to bulk up with four boxes a day of <a href=\"https:\/\/www.amazon.com\/Boost-Essentials-Nutritionally-Complete-Vanilla\/dp\/B001W6RGRQ?th=1\">this one<\/a> after we tried him on all of them. (He wouldn&#8217;t touch Pediasure at all, even the chocolate flavor.) We&#8217;ve also been giving him extra peanut butter and adding heavy whipping cream to his milk.<\/p>\n<p style=\"text-align: center; font-size: 130%;\"><a name=\"qt4\"><\/a><strong><a href=\"#qt4\" style=\"color: black; text-decoration: none;\">&#8212; 4 &#8212;<\/a><\/strong><\/p>\n<p><strong>So about yesterday&#8230;<\/strong> We had an 8:30 appointment with <a href=\"http:\/\/seattlechildrens.org\">Seattle Children&#8217;s<\/a> yesterday morning (which meant leaving at 6:30 a.m. because traffic from where we live north of Seattle to the hospital in the U District is hideous) and they were good with his weight gain. We see them again in two weeks and I&#8217;ll be scheduling a weight check with his doctor this coming week to check in with her about all of this.<\/p>\n<p>I also get to chase a referral for feeding therapy. Woohoo.<\/p>\n<p style=\"text-align: center; font-size: 130%;\"><a name=\"qt5\"><\/a><strong><a href=\"#qt5\" style=\"color: black; text-decoration: none;\">&#8212; 5 &#8212;<\/a><\/strong><\/p>\n<p><strong>For those who will inevitably ask if all of this could have been prevented&#8230;<\/strong> The answer is &#8220;we don&#8217;t know&#8221;. One thing we probably should have done is the high-risk infant screening through <a href=\"http:\/\/benefis.org\">Benefis<\/a> when he was six months old. The problem: Jon was about to lose his parish in Montana and we were traveling all over the place trying to find another call for him. We were also 2 hours from Great Falls and would have had a heck of a time doing feeding therapy there, depending on how often we had to be down there because of our work schedules and having to share a car.<\/p>\n<p>We did have him followed at <a href=\"http:\/\/ucdmc.ucdavis.edu\/welcome\/index.html\">UC Davis<\/a> and through <a href=\"http:\/\/www.easterseals.com\/superior-ca\/\">Easter Seals<\/a> and <a href=\"https:\/\/www.altaregional.org\">our local Regional Center in northern California<\/a>, but he got pickier in his eating as he got older.<\/p>\n<p>Another problem: we&#8217;ve moved 5 times since he was born and have had to start over with the acquiring of specialists each time. We&#8217;re staying put long-term so we should hopefully be able to nip this in the bud right now.<\/p>\n<p style=\"text-align: center; font-size: 130%;\"><a name=\"qt6\"><\/a><strong><a href=\"#qt6\" style=\"color: black; text-decoration: none;\">&#8212; 6 &#8212;<\/a><\/strong><\/p>\n<p><strong>For those wondering what is causing this&#8230;<\/strong> Preemies, particularly those who have had to be on ventilators, are notorious for having texture issues. Add in sensory issues from autism and you have a fun situation.<\/p>\n<p style=\"text-align: center; font-size: 130%;\"><a name=\"qt7\"><\/a><strong><a href=\"#qt7\" style=\"color: black; text-decoration: none;\">&#8212; 7 &#8212;<\/a><\/strong><\/p>\n<p><strong>My current ear worm. <\/strong> Enjoy y&#8217;all!<\/p>\n<div style=\"text-align:center;margin-top:15px;margin-bottom:15px;\"><iframe loading=\"lazy\" title=\"Bonse Aba - Shenandoah Christian Music Camp\" width=\"584\" height=\"329\" src=\"https:\/\/www.youtube.com\/embed\/hLltKI-kIms?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<p>For more Quick Takes, visit Kelly at <a href=\"http:\/\/thisaintthelyceum.org\">This Ain&#8217;t The Lyceum<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&#8212; 1 &#8212; Music take #1. This song came on randomly while I was doing my Word II homework in one of the computer labs on Tuesday. &#8212; 2 &#8212; Music take #2. Loreena McKennitt&#8217;s newest album came out this &hellip; <a href=\"http:\/\/grace-filled.net\/?p=8922\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1,37,2,4,41,25,26,70,17,42],"tags":[],"class_list":["post-8922","post","type-post","status-publish","format-standard","hentry","category-daily-life","category-daniel","category-faith","category-family","category-food-drink","category-health","category-music","category-parenting-kids-with-special-needs","category-personal-issues","category-the-a-word"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p38xoO-2jU","jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/8922","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=8922"}],"version-history":[{"count":5,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/8922\/revisions"}],"predecessor-version":[{"id":8927,"href":"http:\/\/grace-filled.net\/index.php?rest_route=\/wp\/v2\/posts\/8922\/revisions\/8927"}],"wp:attachment":[{"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=8922"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=8922"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/grace-filled.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=8922"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}