Category Archives: Daniel

The Simple Woman’s Daybook: October 27, 2015

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Simple Woman's Daybook

FOR TODAY October 27, 2015

Outside my window… dark as it’s 1 a.m. Temps have been summery though.

I am thinking… about the things I need to do tomorrow to start building Daniel’s support issue in San Jose.

I am thankful… that the first part of the move and the 7 1/2 hour drive are over.

In the kitchen… Dad brought home Hawaiian pizza for me. I’m thankful to be done fasting from gluten!

I am wearing… Momcat shirt and navy/white striped pj bottoms.

I am going… to hopefully be able to sleep soon.

I am reading… Furiously Happy by Jenny Lawson.

I am hoping… that my call to Social Security goes well tomorrow.

I am looking forward to… church on Sunday at ECA.

I am hearing… silence.

A Daniel story for today… he woke up to find himself alone in his bedroom tonight around 10 so he went and climbed into bed with my mom. Thankfully, she found it cute and I was able to settle him back on his bed.

Around the house… painting and decluttering going on.

One of my favorite things… the song “God of This City” by Bluetree. The Chris Tomlin version is sub-par.

A few plans for the rest of the week: un packing, enrolling Daniel in school, and getting services for him transferred up here.

Hosted by The Simple Woman.

7 Quick Takes: Thoughts While Trying to Get My Kiddo to Sleep…

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7 Quick Takes

— 1 —

Dealing with SSA is an occasion of sin for me. Every so often, the Social Security Administration makes people receiving SSI prove that they qualify medically (what… you thought “SSA” was “same-sex attraction?) so I spent the better part of two evenings filling out a ton of paperwork and copying about 50-100 pages of documentation to send in to their office in Pomona. The 50-100 pages of documentation are the assessments and IEP from March because it’s a triennial IEP. (Every three years, they do a whole new battery of tests to see if an IEP is really necessary. In Daniel’s case, that would be a resounding “YES!!!!!!!!!!!!!!”) I couldn’t fit the documentation in the envelope they sent so off to the post office for a Priority Mail envelope I went! The good thing about using them: I can track it to make sure the SSA office received it as I’m completely convinced from past experience that their mailbox is connected to a paper shredder with all the paperwork they lose! (Currently, it is sitting at the sorting center in City of Industry.)

— 2 —

I resonate with this. A friend sent me this article on how doctors take women’s pain less seriously. I’ve had several ovarian cysts and on a scale of 1-10, the pain is an 11. It is seriously the worst pain I have ever had and required Demerol to even remotely touch it. (Waking up after abdominal surgery is a 7.) Anyway, I agree — doctors do not take our pain seriously and I say this having a fairly high pain tolerance. This might also be why many doctors think fibro pain is imaginary.

— 3 —

Prayer request. My dear friend Mandi is in the home stretch of her pregnancy and I would like to ask if you’d please pray her through. Thanks!

— 4 —

Srsly?!?!?!?!? I’ve had a couple of friends whose younger sisters have gone through this. I get the need for modesty but subjecting young women to a hem test like this one is just wrong. Equally if not more wrong were some of the adult comments.

— 5 —

What are the odds??? All three radio stations I listen to on a regular basis (Air1, NPR, and a classical station) are having their pledge drives right now. NOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!! If I could afford to give to all three, I would totally do it just to make the madness stop!!!

— 6 —

Prerequisite baseball take. So… THE METS KNOCKED THE DODGERS OUT OF THE PENNANT RACE LAST WEEK!!!!! The Mets also just took the National League pennant. (I feel that any news about Dodger losses trumps any other baseball news unless it’s the Giants winning.) I haven’t even looked to see who the Mets will play!

— 7 —

I’ve been saying this for a while… Yet another person talking about the movement of my peer group to more ancient forms of worship. Not all of us want rock n’ roll!

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

The Simple Woman’s Daybook: October 19, 2015

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Simple Woman's Daybook

FOR TODAY October 19, 2015

Outside my window… gray. It’s been sprinkling on and off which is making me happy. I’m hoping for a serious El Niño this year!

I am thinking… about the changes coming up this next week and what I have to do this week to prepare.

I am thankful… for the rain and the cooler weather.

In the kitchen… veggie chips and pub cheese from Trader Joe’s.

I am wearing… blue-green shirt (the color of my eyes) and jeans. As usual, I have bare feet.

I am going… to have a lot of errands tomorrow morning.

I am wondering… about some things going on in my life.

I am reading… still Furiously Happy by Jenny Lawson.

I am hoping… for a smooth week this week.

I am looking forward to… the Fall Fundraiser for church on Saturday night.

I am hearing… Daniel bouncing on my bed.

A Daniel story for today… his doctor prescribed Clonidine for him to help calm him down at night and it’s such a small pill that I tried putting it in a little bit of peanut butter to see if he could swallow it that way without me having to grind it into powder. Mission accomplished. 🙂

Around the house… windows open and fans on. It’s gray outside but it’s still humid and warm.

A favorite quote for today… “In three words I can sum up everything I’ve learned about life: it goes on.” — Robert Frost

One of my favorite things… carrots and garlic hummus.

A few plans for the rest of the week: errands and packing tomorrow, Bible study and packing on Wednesday, packing on and possibly soccer practice on Thursday, errands and packing on Friday, and possibly soccer and Fall Fundraiser on Saturday.

Hosted by The Simple Woman.

31 Days of Gluten-Free Life: Reflecting (and Whining) At the Halfway Point

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31 Days of Gluten-Free Life

I’m over the halfway point of my experiment of avoiding gluten for a month and I’m running out of subject matter, at least on days like today when I’m sleep-deprived due to my wee bairn having sleep issues as a result of tweaking his ADHD meds. Anyway…

I’m starting to get some empathy for people who deal with food issues all the time because it is seriously hard to avoid gluten without having to cook from scratch or buy some fairly expensive foods that don’t taste “right”. It’s requiring more creativity on my part than I can exercise at this time of sleep deprivation and some pretty radical changes being made in my life.

However, I’m noticing changes in my mental clarity — I’m not as “foggy” as I usually am and I think I’m probably eating a lot better as a result. I’m definitely eating more protein and I’m actually thinking about how to balance every meal. I’ve also come up with snacks where I can sit and eat at the table with Daniel and that’s definitely a plus.

I’m sorry to admit that I’m planning out my first meal WITH gluten: a Jr. Roast Beef sandwich and fries from Arby’s. (I would have to stop somewhere else to get the Coke.)

The Simple Woman’s Daybook: October 12, 2015

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Simple Woman's Daybook

FOR TODAY October 12, 2015

Outside my window… dark. I have no idea what temperatures were here because I was gone from Friday morning until tonight but I heard something about triple digits. Yuck!

I am thinking… about whether I would have stood up and proclaimed my Christian faith had I been in the room with the Umpqua Community College shooter. I probably would have done so… which I’m pretty sure would scare the pants off my non-believer parents.

I am thankful… for Promise FM. I’m in the midst of making some hard decisions and it was really helpful to have songs outlining God’s promises for my life while I was driving through central California today!

In the kitchen… didn’t cook today but probably some gluten-free mac n’ cheese tomorrow.

I am wearing… green shirt and capri sweats.

I am going… to be playing “catch up” tomorrow after being gone for four days.

I am wondering… about a lot of things right now.

I am reading… Furiously Happy by Jenny Lawson.

I am hoping… school goes well for Daniel tomorrow.

I am looking forward to… Bible study on Wednesday!

I am hearing… nothing.

A Daniel story for today… Mr. Boy usually comes and crawls onto my bed around 11 pm or midnight and he even tucked himself in tonight.

Around the house… silence — everyone but me is asleep.

A favorite quote for today… “Do one thing every day that scares you.” — Eleanor Roosevelt. I chose this one because my mom quotes it to me frequently. (Dealing with social service agencies is not for the faint-hearted!)

One of my favorite things… discovering new artists or lesser known works by established artists of the musical variety.

A few plans for the rest of the week: catching up on errands and paperwork tomorrow, Bible study and probably a quiet service on Wednesday, soccer practice on Thursday, and Matt’s Run on Saturday before Daniel’s soccer game.

A peek into my day… Some of the new songs I heard this weekend:

“This Little Light of Mine” by Addison Road

“Painting Pictures of Egypt” by Sara Groves

Hosted by The Simple Woman.

7 Quick Takes: Only 5 This Week

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7 Quick Takes

— 1 —

Greater Church of Lucifer opening. A friend put this on her wall and commented on the nature of them calling themselves a “church”. I’m truthfully more amused by the $25 catered luncheon. Apparently, Satanists now have the sensibilities of Episcopal church women or something. I would have expected alcohol and debauchery for them, not a catered affair.

— 2 —

Travel. Daniel has a long weekend so he and I are road-tripping to San Jose from Friday to Monday. I’d love prayers for good traveling mercies on our way if you are so inclined.

— 3 —

Update on Kim Davis/Pope Francis. I think I called it. It’s a pity when people play stupid games like this.

— 4 —

Speaking of stupid… I actually had someone cite this study to me. The scary thing: I could have refuted the SafeMinds people as a sophomore taking high school chemistry.

Neil Degrasse Tyson on science.

— 5 —

In case you missed it… At the neurology appointment on Monday, we found out that Daniel’s autism is genetic (he has some duplications in genes on a couple of chromosomes and a deletion in a gene on another one) which means that I can actually tell people that his autism is *NOT* due to us immunizing him for MMR and that their argument is invalid.

That’s it for this week — I’m a bit distracted and have also run out of things to say!

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

The Simple Woman’s Daybook: October 6, 2015

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Simple Woman's Daybook

FOR TODAY October 6, 2015

Outside my window… sunny and brisk. We had two days of rain and it seems like fall-ish weather might be here. I’m giddy to not have temps in the 90’s in October.

I am thinking… about some things going on in my life.

I am thankful… for the neurology appointment yesterday where the neurologist handed me a prescription for Adderall for Daniel. I’d been hedging on medicating him to calm him down but he doesn’t have an off-switch and he’s getting a little too big to be bouncing off walls and out of control. Now to figure out how to get him to take it…

In the kitchen… making pesto quinoa again tonight.

I am wearing… burgundy long-sleeved shirt and jeans.

I am going… to San Jose for the weekend with Daniel. He has a long weekend and I thought it might be nice to go see my parents and have a coffee/church date with Rebecca, Daniel’s godmother.

I am wondering… what I’ll do with Daniel for the next two afternoons. Wednesday is a compact day as usual (he gets out at 12:25) but Thursday is also one which means I have to keep him occupied for an entire afternoon. IKEA may be involved.

I am reading… Furiously Happy by Jenny Lawson. If you deal with depression, anxiety, or self-injury in any form, you need to read the book. The off-the-wall stuff she does during her lucid moments is funny but she also writes some pretty accurate stuff on her normal life.

I am hoping… to get to work out in some form every day this week even if it’s just a walk with Daniel or kicking soccer balls at the park.

I am looking forward to… seeing my parents.

I am hearing… the washer, dryer, and various tools outside.

A Daniel story for today… Little boy was so tired when he climbed onto my bed at 11 p.m. on Saturday that he had forgotten his blankie. (This kid is Linus when it comes to blankies.) I went to his room, retrieved his mommy blankie and his Dodgers fleece (my mother-in-law’s creation — he also has a Giants fleece from me) and made him a little boy nest on Jon’s side of the bed because Jon wasn’t going to be home until super late and I figured Jon would probably do better in Daniel’s bed.

Around the house… machines doing, mother-in-law cooking, cat on the table. (My in-laws’ cats have very bad table manners.)

A favorite quote for today… “When depression sufferers fight, recover, and go into remission we seldom even know, simply because so many suffer in the dark … ashamed to admit something they see as a personal weakness … afraid that people will worry, and more afraid that they won’t. We find ourselves unable to do anything but cling to the couch and force ourselves to breathe.” — Jenny Lawson, Furiously Happy

One of my favorite things… sleep. I’m not getting enough right now.

A few plans for the rest of the week: Bible study tomorrow, date night and choir tomorrow, soccer practice with my kiddo on Thursday, and driving up to San Jose on Friday.

A peek into my day… A meme I sometimes feel like posting…

Apology to the tree.

Post Script…

We took Daniel to a pediatric neurologist yesterday to talk about ADHD meds for him. I think within 30 seconds of being in the room with him, the neurologist had made up his mind to prescribe them. 🙂 Anyway, I was handing him all of the neurology notes that were present in Daniel’s Medical Binder of Fun and he stopped in the middle of reading the genetic testing report from 4 1/2 years ago and looked at me. Apparently, there was one paragraph in there that contained information about genetic mutations on several chromosomes that are frequently found in kids with autism and developmental delays. In other words, kiddo was born this way and this is not the result of the MMR vaccine or aliens messing with his brain waves, or any of the other crackpot theories out there. So please, for the love of God, STOP BELIEVING MORONS LIKE JENNY McCARTHY WHO HAVE NO SCIENTIFIC BACKGROUND OR OTHER PSEUDOSCIENTISTS!!!!

I would be willing to wager serious money that if you did genetic testing on all of the kids who “suddenly” had autism around the time of their first MMR vaccine, you would find similar results.

Hosted by The Simple Woman.