The Simple Woman’s Daybook: July 15, 2013

Simple Woman's Daybook

FOR TODAY July 15, 2013

Outside my window… sunny and hot. I think it was in the 90’s today.

I am thankful… for Jon taking care of Daniel on Saturday when I was going on 2 hours of sleep and taking him to WinCo and Trader Joe’s so I could nap.

In the kitchen… clean dishes. Thank you, Jon.

I am wearing… green t-shirt and black running shorts.

I am creating… blog posts.

I am going… to pray I get decent sleep tonight.

I am wondering… when I’ll do some posting that isn’t meme specific.

I am reading… Apologia pro vita sua by Cardinal John Henry Newman. (It’s a spiritual autobiography on steroids.)

I am hoping… I can get things figured out with my copy-editing tomorrow and what I have left to do.

I am looking forward to… possibly seeing my parents this weekend.

I am learning that I really can’t eat Daniel’s diet without my stomach spazzing.

Around the house… clean counters though I have vacuuming to do.

I am pondering… many things in my heart.

A favorite quote for today… ??Here and here only in all time the myth must have become fact; the Word, flesh; God, Man. This is not ‘a religion’, nor ‘a philosophy.’ It is the summing up and actuality of them all.?? – C.S. Lewis, Surprised by Joy

One of my favorite things… club soda when my stomach is being grumpy.

A few plans for the rest of the week: copy-editing tomorrow/Weds/Thurs, autism therapy on Weds/Fri, and possibly spending the weekend with my parents.

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Five Favorites: Miscellanea (VIII)

Five Favorites

Yon

Reading. I should do more of it rather than sitting on Facebook and waiting for people to play on Words with Friends or Scrabble. It probably doesn’t help that I actually need to be sitting next to my computer for my current read so I can look up the classical references that I don’t get because I never read the works in their original languages like my dad and my grandfather had to do. I also never got into Jane Austen so my 19th century British reading skills are rusty.

De

This prayer. I’m trying to get in the habit of doing Compline from the Book of Common Prayer every night and I love the following prayer:

Keep watch, dear Lord, with those who work, or watch, or
weep this night, and give your angels charge over those who
sleep. Tend the sick, Lord Christ; give rest to the weary, bless
the dying, soothe the suffering, pity the afflicted, shield the
joyous; and all for your love’s sake. Amen.

Twa

Friends who are expecting. I just got the news today that a friend from college and her husband are expecting a little one with a due date of January 4th. It seems like a number of my friends are due in December and January.

Kat

Quiet mornings. I’m incredibly introverted so I need a lot of alone time now that Daniel has after school ABA therapy that lasts 3 hours. This means that I’m really enjoying my quiet mornings by myself when I can get them.

Senk

Cool weather. It’s been 90F+ here for the last few weeks with at least 10 days of triple digits. I’m really craving winter rains and cool temperatures right now.

Go love up Hallie and the others.

The Simple Woman’s Daybook: July 8, 2013

Simple Woman's Daybook

FOR TODAY

Outside my window… sunny. I’m told the temperature outside was supposed to be 95F today and Weather.Com confirms it.

I am thinking… about the crash at SFO and how amazing it is that more people didn’t die. (SFO is 2 hours away so this is major news here.)

I am thankful… for the first responders and passengers who risked their life to rescue people on that flight.

In the kitchen… turkey in the fridge defrosting and marinating overnight.

I am wearing… my black “Governator” shirt and black capri sweats.

I am creating… blog entries.

I am going… to hope that Daniel doesn’t have any more night terrors like he has had the last few nights.

I am wondering… way too many things to list.

I am reading… Apologia pro vita sua by Cardinal John Henry Newman. I’m a fan of spiritual autobiographies and this one was recommended to me. I also finished Between Heaven and Mirth by James Martin, S.J. and The Diva Frosts a Cupcake by Krista Davis while I was in southern California.

I am hoping… that Hunter Pence is voted into the All-Star Game. Go vote! Do it now!

I am looking forward to… my hair cut on Thursday and my massage on Friday.

Around the house… I need to get the Roomba fixed.

I am pondering… too many things in my heart.

A favorite quote for today… “… I ever kept before me that there was something greater than the Established Church and that was the Church Catholic and Apostolic, set up from the beginning, of which she was but the local presence and the organ. She was nothing unless she was this. She must be dealt with strongly, or she would be lost. There was need of a second reformation.” — Newman (I’m taking “the Church Catholic and Apostolic” to be the Church on earth which includes all of us — Catholic, Protestant, and Orthodox — as Newman had not become Catholic when he was writing this.)

One of my favorite things… my mani-pedi today. My fingers and toes are so pretty!

A few plans for the rest of the week: Morning Prayer tomorrow, ABA therapy for Daniel on Wednesday, haircut on Thursday, massage and ABA therapy for Daniel on Friday.

A peek into my day… The zucchini of light.

The zucchini of light

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The Simple Woman’s Daybook: July 1, 2013

Simple Woman's Daybook

FOR TODAY July 1, 2013

Outside my window… dark. It’s 3:15 a.m. so I’m trying to blog out my brain so I might be able to fall asleep.

I am thinking… that climate deniers need to be shot. This could also be the triple digit heat talking.

I am thankful… for A/C right now.

In the kitchen… teryaki chicken marinating.

I am wearing… olive-colored t-shirt and running shorts.

I am creating… blog entries on various subjects

I am going… to hope and pray I can eventually get some sleep. I took some more Benadryl so hopefully that works.

I am reading… Between Heaven and Mirth by Fr. James Martin, S.J.

I am hoping… the heat goes away soon.

I am looking forward to… seeing my in-laws this week.

I am learning to be patient with myself.

Around the house… the Roomba is broken so I’ll be chatting up tech support today to find out what they want me to do.

I am pondering… my faith.

A favorite quote for today… “Christianity, if false, is of no importance, and if true, of infinite importance.” — C.S. Lewis

One of my favorite things… cool rainy weather. I want some. NOW.

A few plans for the rest of the week: Trying to get caught up on devotions, ABA therapy on Monday afternoon, Morning Prayer on Tuesday, heading down south on Wednesday, my nephew’s baptism on Thursday, coming home on Saturday.

A peek into my day… Ernie singing “I Don’t Want to Live on the Moon”. It’s been stuck in my head so I thought I’d share.

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What I Wore On Sunday: June 30, 2013

What I Wore On Sunday

I actually made it to church today. *waits for applause*

But Jen, you’re the pastor’s wife.

Yes, I’m the pastor’s wife but I have a sick kid, have my own health issues and have been gone at least 2 weekends this month.

So anyway…

I woke up with enough time to have some personal devotional time before going and getting the little blond boy up and having a tickle fight with him before getting dressed. We made it to church with a little bit of time to spare and one of my church women did the most gracious and wonderful thing ever: she offered to take Daniel outside during the service if he got grumpy so I could focus on worship. I felt really bad turning her down but it was about 85F outside around the time church started at 9:30 and is going to hit at least 104F before the day is through — I didn’t feel like I could ask her to do that if it was going to be that hot. The little monster and I lasted until after the sermon hymn before he hit the point of no return with his grumpiness so we headed back to the parsonage, grabbed my purse, and went out to take care of a couple errands before the day got too hot. (It was 90F by that point.) When Jon got home, he communed me. (The deal we have is that if I’m not present at the altar rail to receive, he brings the Eucharist to me at home.)

So… onto the pictures!

Do you know how heavy that laundry basket is???

I hate just posing by myself and Edda (my beautiful house panther) was off skulking somewhere so I decided to hoist the bear child in a laundry basket. If I look a little grim, consider that Daniel is almost 35 lbs so that laundry basket was heavy!!!

I've got 33.4 lbs of boy in there!!!

My clothes
Shirt: Kohl’s.
Skirt: Kohl’s.
Flip flops: Old Navy.

The skirt is one that I got a year ago and forgot about. The nice thing is that I’ve lost some weight so I can actually pull it up over my hips without unzipping it. I love the length because it works for chasing Daniel and taking him around the block during worship on days when the temperature doesn’t approach the surface of the sun.

It's a good thing he's cute because he's breaking my arms!!!!

The bear child’s clothes
Shirt: True Fan. Go Giants!
Shorts: Circo.

Go check out the better dressed people in the link-up!

The Strength to Carry On

For those not familiar with what’s been happening lately, Daniel underwent a sedated ABR on Thursday that showed mild hearing loss. This is not a surprise and while it seems like horrible news, it’s actually a blessing to find this out. Daniel is like a jigsaw puzzle of sorts and this is a puzzle piece that we’ve received as to why he hasn’t developed language yet. The next step is hearing aids and the fabulous audiologist is working on getting that in motion.

I truthfully exist in a state with a stress level of 7 or 8 being calm and normal. My FNP jokes that if I come in and my stress level is that low, things are going well because it’s routinely an 11 out of 10. I don’t whine a lot on this blog about how hard it is to be Daniel’s mom because so many other people deal with harder things regarding their kids and do it so gracefully. I will say though: it is incredibly hard some days to be the mom of an autistic kid with so many health problems and I don’t know how I do it, save for the grace of God who gives me the strength I need to persevere.

There are some thank-yous in order however.

Thank you to my wonderful husband Jon who kept the house quiet today and took care of Daniel (even cuddling him this morning while Daniel napped on his lap) so I could spend the day sleeping and trying to get some strength back. It’s been a tough few weeks and I’ve appreciated the chance to recuperate after beating myself to a bloody pulp as I’ve tried to push through.

Thank you to my wonderful mom and dad who hosted us last weekend for the Promise Walk for Preeclampsia, especially my mom who pushed me to finish the three mile walk and watched Daniel so I could take a hot shower and try to avoid my muscles spasming. She also walked Daniel around so I could attend the program portions of the walk. 4 years ago, she caught the first flight she could get to be with me for a week while I tried to heal from my c-section and dealt with the trauma of everything, holding me as I sobbed every time I left the NICU and ripping the neonatalogist a new one after he made me cry.

Thank you to my friend Mary Kathryn of Crochet Chiq who posted a prayer request to Facebook on *my* behalf, asking for prayers for strength for me to continue being the mom I need to be. I don’t think there are enough words to say thank-you for that and it made me cry tears of gratitude.

Thank you to Jeanne, Mandi, and everyone who emailed me to let me know they were praying for us. You give me strength as you reaffirm that I’m not alone and there aren’t enough words to express how much that means to me.

Thank you to my wonderful #Cathsorority sisters who bless me with prayers for myself and for Daniel despite the fact that I’m not Catholic. I appreciate all of you so much and wish I could tell you how much you bless my life.

Thank you to Thomas of Strong Catholic for letting me babble to you on Facebook as I was sitting in the Recovery Area waiting for Daniel to wake up. I appreciate you listening to me when I’m sure I wasn’t making a huge amount of sense.

Thank you to Audrey Bracchi Au.D of UC Davis for working so well with Daniel and I, helping me formulate blog entries to enlighten people as to the findings, for explaining all of this to Jon over the phone, and for taking care of figuring out the next steps so I don’t have to. I really look forward to working with you.

Thank you to everyone at the UCD Children’s Surgery Center for being so awesome and making this process so painless. From Child Life meeting us at the desk to awesome nurses, a wonderful anesthesiology resident, and everyone else, you made my life bearable on Thursday morning, This is why I love working with UCD Health Services — y’all are just so awesome and patient-focused.

There are many other people (like Mrs. H, Daniel’s teacher) who deserve my undying gratitude but I felt the need to give some massive thanks to all the people who have gotten me through the last couple weeks.

7 Quick Takes: An Update on Daniel, Hot Weather, and Interesting Posts This Week

7 Quick Takes

— 1 —

Update on Daniel. Everything went as well as things could go today. We had to be at UCD Medical Center at 6:15 am and though we were a bit late (the main hospital is a maze), it worked out fine. The Child Life therapists met us at the the desk while we were checking in and took us back. They entertained Daniel while we got him measured and weighed and then while they were taking blood pressure/pulse ox/hooking him up to monitors. He got to pick out two toys to play with and that kept him entertained until the Versed (which he took by syringe with no problem) kicked in. Our anesthesiology resident was lovely (and a former autism therapist before she went to medical school) and our audiologist (who I had met the day before) was great. I had a 2 hour wait while he was in the test and then we got the news that they did find something: mild hearing loss in Daniel. (More later.) They let Daniel sleep the anesthesia off instead of rousing him and while we were waiting, I talked to his nurse about his knitting/crocheting/quilting projects. (The conversation got started because the nurse was telling me about the pillows one of the nurses and her daughter make for all the kids to take home. Daniel’s has Sesame Street characters on it.) Daniel woke up and had some juice while we waited for anesthesiology to clear him to go home. He is now (Thursday night) his normal bearish self. As far as these things go, this was an absolutely painless experience.

— 2 —

So, about that hearing loss… I was suspecting that he wasn’t hearing things totally and this was actually a relief because it means that my suspicions were correct. Yeah, it’s not ideal that he has the mild hearing loss (something that was probably present at birth and missed on his newborn hearing screening) but he qualifies for hearing aids and between insurance, Medi-Cal, and California Childrens’ Services, we can get them paid for. It’s also one more puzzle piece in place for the medical mystery that is Daniel. It isn’t ideal but very little in my life is at the moment and I’ll settle for “we know what’s going on” rather than all of the “we have no freaking clue why this is the case” that I usually get. This will probably also affect his speech therapy because he’ll probably be able to understand the things his teachers and speech therapist are trying to do with him.

— 3 —

The next steps. The next step is an ENT appointment to look at this from a medical perspective and then we’ll meet with her for a hearing aid appointment where they’ll give us a boatload of information and do ear molds (so we can mold the hearing aids to his ears). I also really like this particular audiologist — she’s a warmer person than the other one we’ve had through UCD and she’s got other autistic patients who have hearing aids so it’s not like this is new for her.

— 4 —

All is well again. Wipeout is back this week. All is well with the world. At least they just pre-empted ABC shows for the NBA Finals instead of CBS ones — that would have been just brutal.

— 5 —

Orphans. Do you see these three cherubs?

First row: Brett and Iris.
Second row: Kaia.

BrettIrisKaia

Brett still needs a mama. Iris finally has a family committed to her. Kaia has a family committed to her who will be traveling to her country to meet her on July 26th! Click on their names to see their Reece’s Rainbow pages.

— 6 —

Blog posts of note. This week, I wrote about my experience with the Promise Walk this year, 10 things I live for, and five of my favorite passages of Scripture.

— 7 —

Hot hot hot! It was 97F today and will be 100F or higher for the next 5-6 days. This would be lovely if I didn’t have to be out in it. However, we’ve got the parish picnic tomorrow so I’ve got to deal with at least an hour of it in addition to whatever time I spend out doing errands and at Daniel’s WIC appointment tomorrow. I’m thinking that it would be great if Jon were called to a church in Alaska…

For more Quick Takes, visit Jen at ConversionDiary.Com.