7 Quick Takes — The A Word

7 Quick Takes

We’re almost 6 days into January and already I want a restart on the year. This can’t be good.

— 1 —

It’s looking like Daniel has a diagnosis someplace on the autism spectrum. The appointment on Tuesday morning did not go well as he did not cooperate for the pediatric developmental fellow who was administering a developmental assessment. Everyone came in and talked to me afterwards and explained the reasoning for their suspicions. It makes sense and would explain the language delay, the problems engaging with people, and the obsession with doors and drawers. Their pediatric resident came in afterwards and gave me hugs. She had been the one who coordinated all of Daniel’s care in the PICU in March so I was really happy to see her again and I hope she had gotten to play with Daniel a little bit when he was out of the room and I was giving the pediatric developmental fellow his health history. Jon is happy with the fact that we likely have a diagnosis and some answers. I was truthfully pretty devastated though I managed to make it out to the car before crying.

— 2 —

Please, for the love of [insert deity], do not tell me about your mother’s cousin’s neighbor’s college roommate’s husband who has a child with autism. Seriously, I get that you’re trying to make me feel better but unless you have the kid with the condition, I honestly just wish you would stop talking. The spectrum is pretty big and unless you have the kid, you don’t know really where on the spectrum they are. It’s also a whole lot more helpful for me to hear from someone who is raising a kid or two with said conditions.

— 3 —

It’s actually quite rude and incredibly tactless to butt into a conversation and ask nastily, “Why are you so surprised?” (Yes, this actually happened to me last night and it took every ounce of self-control not to toss the contents of the pot of tea between us across the table at her.) This person had already gotten herself on my spit list in the first five minutes of dinner last night and that comment was really inappropriate. I responded politely because I was flanked by the person’s step-sister and our council president (as this was at our monthly Ladies’ Night Out where all the church women go out to dinner). Otherwise, she would have had hot tea flung at her and I probably would have slapped the living daylights out of her. (I’m seriously trying to avoid foul language on this take because this is a family-friendly blog.)

— 4 —

The diagnosis isn’t the worst thing on the planet but it doesn’t make it any easier. I’m fully aware that Daniel isn’t going to die from being on the autism spectrum and thankfully California has laws in place requiring insurance companies to cover autism therapies. (I love my socialist paradise at times as well as Governor Moonbeam.) It was devastating because I thought we were done with obstacles being thrown in our path and it’s ONE. MORE. OBSTACLE. that we have to tackle. Thankfully, he qualifies for a lot of programs and we’re hooked up with a group at UCD Medical Center who actually does autism specifically. He hasn’t had the ADOS administered yet (that will be Monday) but it’s almost a forgone conclusion that he’s on the spectrum… though you could put anyone on the spectrum on any given day given how broad it is. And yes, I do know about the website Autism Speaks.

— 5 —

In addition to all this, I’m having fibro pain. Last week, I lost a battle with my parents’ ice maker and had a gouge taken out of my hand. Well… said injury is causing hand and finger pain — not a good thing when you’re a blogger and have to use your hands as much as I do. Add in tendonitis in my thumb from a Cipro or Levaquin prescription, and you have a grumpy Jen. Whine whine whine WHINE!!!!

— 6 —

I apparently witnessed part of a high-speed chase last night without knowing it. I was in the parking lot finding a parking space when I saw a low-flying chopper with its searchlight on. I hadn’t seen one of those since I lived in Pomona and we’d get them lighting up the apartment and rattling the walls. I wondered what was going on and saw this story on several news stations when I got home. Duuuuude…

— 7 —

Yesterday, Daniel and I headed to Miwok Park in Elk Grove after doing a Target run. He did really well on the big kids’ playground and conquered the 2-5 year old area as well. The only downside was a really rude little boy who went on the suspension bridge and started jumping up and down to try and knock Daniel off. I told him to cut it out and play nicely. He replied that he didn’t have to listen because I wasn’t his mother. So… I went and found his mom and told her what had happened. Daniel and I headed out and when I looked over my shoulder, his mom was putting him in a time-out. I do appreciate it when parents actually discipline their kids.

For more Quick Takes, visit Jen at ConversionDiary.Com.

9 thoughts on “7 Quick Takes — The A Word

  1. Consider this a virtual hug from a 3000 mile distance. Keep your chin up, take a deep breath and barrel through the grieving period. Daniel may never understand how lucky he is to have a mother as passionate and proactive as you. You’ll get your feet under you soon!

  2. It seems like when one stressful thing comes up, a whole bunch of them just pop in! I will pray for you and your family for whatever it might be that you guys need… I don’t know what it is, but God knows. He’ll help you through it all.

  3. Isn’t it amazing how a diagnosis answers so many questions but opens up so many more…I remember getting Tommy’s and feeling like…ok now what.

    God bless, I will keep you in my prayers
    Michael

  4. I will be praying for Daniel, you and your husband after this hard news. And for everyone around you to be sensitive and polite–kudos for your restraint, that must’ve been so hard to take.

    And yes, we get helicopters and searchlights above our apartment complex surprisingly often for living in Orange County. It’s always a little disconcerting…

  5. *hugs* I still can’t get over the gall of that woman.

    And shaking on the suspension bridge is SO not cool. That stuff used to scare the crap out of me with jerks at the park, even when I was twice Daniel’s age. I am glad that you and his mom were able to correct that behavior.

    The program at UCD sounds awesome. I’m glad you are near several research institutions.

  6. Hugs to you! I think a diagnosis like that is hard to swallow regardless of whether it is expected, suspected, not so surprising, or totally out of left field, and like you said… it is ONE MORE OBSTACLE. You guys have enough of those already. I won’t tell you about my brother’s sister-in-law’s coworker’s neighbor’s best friend who is raising a child with autism and using XYZ therapy or diet. I will say that I know from seeing friends raising children with autism that it is definitely a challenge. It sounds like you have some good resources there though, so I hope you can find the support you need. Hugs!

  7. Wow, sorry to read all of this Jen! This is big-time stuff. I hope you find things much improved once he starts his therapies. So hard. šŸ™

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