The Simple Woman’s Daybook: March 28, 2011

Simple Woman's Daybook

FOR TODAY March 28, 2011

Outside my window… sunny and supposed to be in the 60’s. A drastic change from the apocalyptic storm we had on Thursday.

I am thinking… about how much I want to go back to sleep.

I am thankful for… Daniel amusing himself right now so I can do this.

From the kitchen… probably tomato soup from Trader Joe’s.

I am wearing… a charcoal shirt and sweats.

I am creating… this entry and a baby blanket if I ever find time to work on it.

I am going… to Trader Joe’s and possibly Walgreens later.

I am reading… Fowl Prey by Mary Daheim.

I am hoping… it doesn’t take too long to assemble and print out all the stuff that Medi-Cal wants.

I am hearing… the furnace and Daniel.

Around the house… laundry has to be sorted and folded.

One of my favorite things… Daniel’s smile and laugh.

A few plans for the rest of the week: meeting with Medi-Cal tomorrow, going up to Sacramento on Thursday or Friday to get Daniel’s Lovenox refilled.

Here is picture for thought I am sharing… No picture this week — I’m unprepared.

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Flattened (XIII)

Daniel has been home for a week and is doing well. He’s sleeping in his playpen (which is better than our bed), he’s tolerating his shots (though he still cries), his bloodwork came back looking good, and his follow-up appointment with his doctor went well. And yet… I’m still flattened with exhaustion.

[+] I’ve dealt with the various social agencies this week that determine Daniel’s eligibility for a social program to pay our hospital bills and I meet with yet another person next week to continue the process. Monday, I was treated like I was trying to defraud the government by one of the people I had to interact with and Friday, they were nice to me. It was like they understood that crap happens to people sometimes and this was one of those things. I’m hoping that I get treated well by the person I meet with on Tuesday.

[+] Jon was installed as pastor of Metanoia Lutheran Church on Sunday. We had a number of clergy there and my evil twin and my sister-in-law came up for it as did one of my college friends. I didn’t know how Daniel would handle it but he did well… with some bribes of yogurt snacks.

[+] I saw a link to an article called The Lutheran Landslide on the National Catholic Register and discovered that one of my seminary professors, Dr. Michael Root, had converted to Catholicism. This doesn’t surprise me — he was one of the BIG people in the ecumenical movement in the ELCA and with the decisions made by Churchwide Assembly in 2009, I believe that he was pondering in his heart how to remain faithfully Lutheran but disagree with the denomination. He was one of the most “Christian” professors I had and I can’t think that this was a decision he made lightly. I totally support him in it (not that it matters whether I do or don’t) and I wish him the best. His pastor (previous to him converting) blogged very gracefully about the conversion and even posted a picture of him at the mass celebrated in honor of his conversion. I am a bit disheartened, however, by certain Lutheran dissidents (Kris Baudler among them) who made snippy comments about Dr. Root not being a real Lutheran to begin with. (I’ve unfortunately had the experience of meeting Pastor Baudler and he is rather vitriolic and is puffed up with pride in his academic connections.) To Baudler and others like him: GET A LIFE. Dr. Root is twice the theologian (and twice the person) than you’ll ever be and I’ve never known him to be vitriolic about those with whom he disagrees. (This has nothing to do, of course, with the fact that he managed to keep me awake through two quarters of Systematic Theology at the most sleep-inducing class times and put up with me pulling myself up to my full 5 feet 1 inches and asking him in my sarcastic 21 year old way what we were talking about actually had to do with reality.)

[+] One of the Catholic bloggers (Jennifer Fulwiler) who I have found through my Byzantine Catholic blogging friend wrote a guide on understanding atheists for her Catholic readers that was based on her experiences as an atheist. (She has since converted and is widely-read and sought after as a speaker.) Well… PZ Myers of Pharyngula decided to refute her… in just about the most disrespectful way possible. Most of the 200+ comments are along the same line of disrespect. One cannot comment on his page without logging in so I couldn’t tell him that he and his minions suck. But seriously… is it so hard to be respectful? Not to mention… atheism has just as much of a wide spectrum as Christianity so Jennifer’s experiences are just as valid as Professor Myers’ experiences are.

[+] Currently, I’m dealing with a little bear who does not want to go to sleep and who has been exhibiting toddler rage for the last 30 minutes. God willing, he’ll go to sleep so I can watch COPS in peace.

The Simple Woman’s Daybook: March 21, 2011

Simple Woman's Daybook

FOR TODAY March 21, 2011

Outside my window… sunshine after storms.

I am thinking… about all the patient assistance stuff and bureaucracy to deal with to try and get some of Daniel’s hospital bills written off or paid by the state.

I am thankful for… Daniel being discharged.

From the kitchen… not sure tonight.

I am wearing… black v-neck shirt, pj bottoms

I am creating… a baby blanket and this entry.

I am going… to UCD Medical Center tomorrow for Daniel’s Coumadin Clinic appointment and various other places this week.

I am reading… Legs Benedict by Mary Daheim.

I am hoping… Daniel’s clot goes away so I don’t have to do 2 1/2 more months of shots on him.

I am hearing… Finian purring and Daniel whining.

Around the house… stuff to unpack.

One of my favorite things… having a snuggly child again.

A few plans for the rest of the week: doctor’s appointments, mid-week Lenten services.

Here is picture for thought I am sharing… My wedding bouquet and the rings. (My 9th anniversary is Wednesday.)

Bouquet and rings.

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Flattened (XII)

[+] We are having to give him shots and I’ve done 3 so far at home. This isn’t making me a happy little lepicat but it’s better than the feeding tube.

[+] Daniel used to like baths — he now appears to be afraid of them. Oyyy… It might be that there’s pain involved or that he’s afraid of the sound of the running water. I climbed into his bath last night and tonight because I needed to clean him (first bath in almost 3 weeks last night and had to get the adhesive off his neck tonight). Hopefully, he gets used to them again.

[+] I had an excruciatingly painful migraine today, complete with nausea. Jon had to do bear care and it was hard because Daniel is not being his normal self. He’s much more clingy and on the plus side, he’s fallen asleep on laps today.

[+] I have to get taxes done in the next two days and go apply for Medi-Cal on Monday. I then have to go down and apply for California Children Services on Friday. I’m hoping they’ll accept me instead of Jonathan for that appointment. I’m also praying that we’re approved — it’s going to be a 5-figure hospital bill otherwise.

Flattened (XI)

[+] Little dude passed his swallow study and will hopefully get his tube out today or tomorrow. I’m trying to keep the liquids going at the moment, now that he’s allowed to have them again. He’d rather be moving and out than hydrating himself so I’m having to make stuff up to the tune of “Twinkle Twinkle Little Star” to sing to him while we have “baba time”.

[+] Our roommate’s family is annoying me. They are having loud conversations in Spanish at all hours and they bogarted some of Daniel’s baby food today and then lied about it. I’m wondering why the kid isn’t in the PICU because his O2 alarm goes off frequently and the numbers are less than stellar.

[+] We’re trying to get two bottles of Pediasure down Daniel’s throat today. We’re currently at just over one bottle.

[+] Discharge is looking like it will be tomorrow. We’re going to have to make trips back here to the Coumadin Clinic to follow Daniel’s Lovenox dosing and shots. Not my preference but I guess it’s what we’ll have to do.

Flattened (X)

[+] Daniel was up until 2 a.m. which meant I was too. He was taking apart everything in his crib (which prompted me to tell the nurses not to give him a screwdriver). Adding to all of this, our roommate last night and her parents were loud so it took awhile to get to sleep. They also had an annoying habit of leaving the TV on. I was in such a foul mood this morning that it took all my self-control not to throw the chair through the TV at Elmo when Sesame Street came on.

[+] I got woken up at 8:00 this morning to go down to radiology with Daniel. At first, I was planning to let him go down alone but my nurse guilt-tripped me into going. (She asked if I wanted to be down to comfort him. Guilt trip laid.) He, however, was not going to be comforted and was a regular grizzly bear. The clot is also still there (though it’s better) and this means 3 months of twice-daily shots (as opposed to the six weeks they originally told me that it would be). I was not happy.

[+] Being wholly sleep-deprived, I started stressing about him not cooperating during his swallow study tomorrow and having to go home on a feeding tube (which would be a new level of purgatory for me, his shot-giver and caregiver). So… pray that he cooperates tomorrow.

[+] Adding to all this (oh yes… there’s more), my laptop was having start-up problems. At this point, I started sobbing. The charge nurse came in and tried to calm me down. She suggested I go through the start-up recovery (which I did… five times) and she offered to take Daniel for some cuddles so I could rest. Bless her. A few times today, I’d pass by and she’d magically have Daniel with her. The second time, he was on her lap cuddling and helping her chart. (Apparently, he reminds her of the little boy of one of the other nurses who was in the same situation and actually *DID* end up on ECMO.) The third time, he was sitting on the counter while she combed his hair after giving him a bath. (He was experimenting with bowel movements while his diaper was off. The bedding got changed and he got a bath — all while I was down at dinner.)

[+] I got a shower at the Ronald McDonald House… and my library book disappeared there. Thankfully, it wasn’t one of the LINK books which have a $115 penalty if they get lost.

[+] I am headed to bed. Daniel seems to have settled down after removing his feeding tube TWICE.