Struggling Here

Four months ago, I blogged about a Montana couple who had filed a lawsuit because their daughter was born with cystic fibrosis. They contend that the doctor, hospital, and childrens’ hospitals should have tested them so they could have aborted her and saved themselves emotional and financial stress. A judge ruled a week or two ago no the case (no link to the article because the Great Falls Tribune now requires a paid subscription) and said that the lawsuit could go forward.

W.T.F.??????????

Do they hate their child that much?!?!?!?!?!? I mean, it sucks to be them or the parent of any child with special needs but guess what… YOU DON’T GET TO PICK YOUR F-ING DESIGNER BABIES!!!!!!!!! Yes, their life sucks and yes, it is stressful to have a kid that sick; but their daughter will eventually grow up and learn to read and she’s going to discover that her parents would have aborted her if they’d had the chance. How exactly are they going to explain THAT?

As the mom of a son with autism and developmental delays, I can tell you that it is a really hard life and there are a lot of days when it is an absolute struggle to drag myself out of bed because I feel overwhelmed. It’s why I’ve built up a support system around me where I can call someone and say, “I really need prayer today” or “I really need to vent about how frustrated I am.” I’m far from perfect, I throw the best pity parties around, but I can’t imagine my life without Daniel. Almost losing him last March almost killed me and I still tear up and cry a year later at the memory of that night. My life is so much immeasurably better with him in it and his laugh makes up for all the stress of the emergency c-section, my pregnancy from hell, the NICU stay, the PICU stays last year, and the struggles to get him where he is now. IT. IS. ALL. WORTH. IT.

I just want to ask people to pray for this couple that they get out of their selfish mindset. Right now, it’s a struggle for me not to curse about them any more than I have.

The Simple Woman’s Daybook: July 2, 2012

Simple Woman's Daybook

FOR TODAY July 2, 2012

Outside my window… sunny and hot — probably near 90F.

I am thinking… that I hate heat.

I am thankful… for Morning Prayer with Anne.

In the kitchen… English muffin pizzas.

I am wearing… cammo green shirt and capri sweats.

I am creating… crocheting and a topic list for Brett’s Blogathon 2012.

I am going… to probably have to take Daniel for a drive to pacify him because he woke up grumpy from his nap.

I am wondering… if I’m going to make it until 9:00 (Daniel’s bedtime) — I’m sleepy.

I am reading… Sugarplum Dead by Carolyn Hart and the latest Leslie Meier book.

I am hoping… Daniel calms down and I don’t need to take him for a drive.

I am looking forward to… Ladies’ Night Out on the 11th.

Around the house… a Cheerios tornado on the living room floor among other things.

I am pondering… many things internally.

A favorite quote for today… “You don??t have a soul. You are a soul. You have a body.” — C. S. Lewis

One of my favorite things… sitting in the quiet and listening to the birds sing in the morning.

A few plans for the rest of the week: Bible study on Thursday and various errands throughout the week.

A peek into my day… My bottle for the Bottle Challenge for Brett.

My bottle for the Bottle Challenge for Brett

Hosted by The Simple Woman’s Daybook