[+] Daniel had a grumpy day yesterday in which he was really irritated when he was awake. This might be just him feeling sick and having less meds in him to make him happy, it might be the weaning off the drugs he was on when he was on the ventilator, or it could just be him feeling icky. It was hard for me because I couldn’t really do anything to calm him down.
[+] Speech therapy came when he was trying to go back down for a nap so he didn’t pass his swallow test. Hopefully, he’ll pass it today so he can start having bottles and stuff by mouth.
[+] He’s getting his central line (the IV in the artery in his groin) out today and may be able to move to a regular pediatrics unit. This is both a good thing and something that is terrifying me. It also means that he’ll be starting on Lovenox shots and he may have to go home on those. Please pray that he doesn’t — I’m not feeling good vibrations about having to give him shots.
[+] I’m menstrual so I’m hyper-emotional. This is meaning that I’m sitting here in the cafeteria wanting to cry about all of this. I’m used to life on the PICU (as bizarre as that sounds) and I’m terrified of change. I think I’m also terrified of taking Daniel home and doing this on my own. (I just gave in and got some chocolate. At breakfast.)
I can only imagine how scary it would be to go home after such a traumatic time. I hope that everything goes smoothly and that the transition back is not difficult.
I totally understand being scared to go home. I had cancer in my early 20’s, and every time I was in the hospital for something serious, it was really scary going home. As much as I hated the hospital, I loved the security it provided. It will be tough, but hopefully they won’t send Daniel home until they are sure he is really over the worst of it and is strong enough to be there with very little risk. As for Lovenox, I had to give those to myself during pregnancy. As shots go, they really aren’t bad, but I wouldn’t want to have to give them to a little one either. 🙁 Praying that he is done with the Lovenox before you guys get home.