31 Days of Parenting Kiddos with Special Needs: An Example of Being Thankful in the Midst of Crisis

31 Days of Parenting Kiddos with Special Needs

I’m trying to get my Excel homework done and uploaded so please accept a snippet of a post on Thanksgiving in the midst of the PICU from 5 years ago.

So I’m sitting on my fold-out bed in the PICU (Pediatric Intensive Care Unit) with Daniel. (He got my cold. Chest colds and him don’t mix well. He spiked a 102F fever and started having problems breathing. I think the rest of the story is self-explanatory.) In an effort to ward off the pity party that I’m so incredibly tempted to throw for myself, here are seven things I’m thankful for right now. Oh yeah… updates on his condition and what’s going on can be found here.

— 1 —

Daniel having Medi-Cal through SSI. It’s paying for what our insurance doesn’t. Given that our last PICU trip involved a 19 day hospital stay, this could add up pretty quickly.

— 2 —

My mom. She drove us to the hospital (we’re down with my parents) and stayed with us until they brought Daniel upstairs. This entailed reciting loads of poetry and nursery rhymes and helping to hold the little bear down while they did unpleasant things to him. Words can’t express my gratitude.

— 3 —

My evil twin. He brought Jon down with a container of Mushroom Risotto for me. Last time we had a PICU stay, he stayed with Jon and I through the worst night and hosted my parents on the weekends so they could be with Daniel and I.

— 4 —

Jon. He read to Daniel and came upstairs with us and prayed with him. He also brought me clean underwear and pajamas as well as part of my prescriptions. I’m loving the clean underwear, the jammies, and the Klonopin.

— 5 —

The speed of the ER peeps once the words “respiratory distress” were uttered. We were only down in the ER for 3.5 hours. (Normal is 4+.) We had a doctor checking him within 10 minutes. That’s impressive.

— 6 —

People praying. I put out the word to my people and there should be prayers ascending. Please also add yours in. We can’t get enough prayer right now.

— 7 —

Being ahead on NaNo. It’s meaning that I might actually make it to 50K before 11/30 this year.