31 Days of Parenting Kiddos with Special Needs: And So It Begins

31 Days of Parenting Kiddos with Special Needs

So here we are again. The Write 31 Days challenge is upon us and I had to come up with a topic for this month. As it is constantly on my mind these days, I picked “parenting kiddos with special needs”. I am hoping that whatever I write will help to encourage or educate or at least resonate with someone and make them feel less alone in their parenting.

This post will be stuck at the top of my blog for all of October so that y’all can have links to the things I am writing.

For the sake of disclosure, the graphic for this event is a picture of Daniel taken by his physical therapist at a park date with her in December 2011 and altered in MS Paint. (Canva wasn’t doing it for me this time.)

Day 01: My Story
Day 02: Developmental Delays
Day 03: Autism
Day 04: ADHD
Day 05: IEP’s and 504 Plans
Day 06: Blogger Spotlight on Mary of “Passionate Perseverance”
Day 07: Blogger Spotlight on Kelly of “This Ain’t The Lyceum”
Day 08: Doctors
Day 09: Information Literacy
Day 10: School Choices
Day 11: You Know You’re The Mom of A Developmentally Delayed Kid…
Day 12: ID Bracelets
Day 13: Checking In
Day 14: Snarky Answers to Stupid Remarks
Day 15: Blogger Spotlight on Rebecca of “Backwards in High Heels”
Day 16: Choosing Life (I)
Day 17: Choosing Life (II)
Day 18: Autism Speaks
Day 19: A Day in My Life with Daniel
Day 20: Blogger Spotlight on Kathleen of “So Much to Say…”
Day 21: Choosing Life (III)
Day 22: Hospital Bags
Day 23: An Example of Being Thankful in the Midst of Crisis
Day 24: Marital Impact
Day 25: Mental Health
Day 26: A Re-Blogged Guest Post
Day 27: Inspiration Pr0n
Day 28: Autism Sleep Issues
Day 29: Blogger Spotlight on Cammie of “Beyond Pearls”
Day 30: Food Issues
Day 31: Vaccines and Autism

7 Quick Takes: The “Your Notebook Is So Pretty” Edition

7 Quick Takes

— 1 —

Apparently, I might be able to #bulletjournal? On Monday, my Accounting teacher collected all of our notebooks before giving us our homework quiz so she could grade our outlines (for those who decided to do theirs on looseleaf paper, she collected those) and upon seeing my notebook, someone blurted out that my notes were so pretty and precise and that I must be an engineer. Considering that I can barely draw a straight line even with the help of a ruler, I was suitably honored to hear this. #egostroked

Apparently, I might be able to do a #bulletjournal someday… if the #bujo can be in pencil. 🙂

— 2 —

A song for today. I went to the chapel service held by the Campus Christian Fellowship this week (think Intervarsity or Cru) and this song was sung. I’m kind of in love with it.

— 3 —

Interesting… Apparently, the Depression changed our eating habits and how we look at food. I might have to check out the book reviewed in this article.

— 4 —

Proud of my home state. Because of the accounts scandal at Wells Fargo, California’s State Treasurer John Chiang has suspended business relationships with them for the state because he feels they should be punished for their wrongdoing. Considering they’re a crappy bank to use (I just ended my banking relationship with them after 18 years because of bad behavior on their part in the last few years), I’m happy that he’s taking a stand against them instead of being bowed by them because they are kind of a goliath entity in the financial world.

— 5 —

An interesting suggestion. Elizabeth Scalia of Aleteia.Org has an interesting suggestion: read aloud to someone. Even though I can read by myself now, it’s fun to be able to sit and listen and crochet while listening to someone read.

— 6 —

*facepalm* This personal anecdote about racism has been making the rounds on Facebook. My question to y’all: would you have stepped out of your privilege and comfort zone and stood up on behalf of Ashley (the protagonist)?

— 7 —

An explanation on the Dr. Sears sitch. Last month, I blogged about anti-vaccination law activist Dr. Robert Sears being charged with gross negligence and facing the possibility of losing his license to practice medicine in California and shared the story on Facebook. One of my more crunchy friends from college is a fan of his vaccine book and schedule and emailed me to ask why I thought this was such a big flipping deal.

Well…

1.) His failure to actually research the kid’s vaccine reaction (and it would have been very well-documented if he had done so) if he had another one. I know from my own kid that having a paper trail is essential and having all of the records is vital if your kid has any problems, so much so that one specialist will not rule on anything unless they’ve seen all the records. I have never had a doctor take my word for it on almost anything related to Daniel — everything has to be backed up and it is considered to have never happened if it isn’t documented. This means that he would have needed records from the kid’s prior physician, ER records, or urgent care records from when the mom got the kid treatment for the vaccine reaction… because what mother wouldn’t take their kid in if they were having a reaction like that?!?!?

2.) By excusing the kid from future vaccines (and not just the one to which he reacted badly), he put both the kid at risk of contracting a disease that could have landed him in the hospital or killed him as well as anyone else who can’t be vaccinated for health reasons. One of the reason that they started requiring such a strict policy in California is that there were outbreaks of diseases like pertussis (for which you cannot vaccinate infants) and measles in the state that could have been prevented if parents hadn’t claimed phony “conscience” reasons for not vaccinating themselves or their kids. Having been in this situation, it is *HORRIFICALLY PAINFUL* emotionally to have to watch your kid suffer to breathe or to have your kid end up with a horrible side effect from a hospital stay. I know I would be angry beyond words and pondering a lawsuit if Daniel had gotten something like pertussis as a baby because someone unvaccinated (for no rational reason) was in the waiting room with him and Daniel died as a result. THIS ACTUALLY HAPPENED IN LOS ANGELES COUNTY IN 2010!!!

3.) For the love of all things holy, IT HAS BEEN PROVEN BEYOND A REASONABLE DOUBT THAT VACCINES DO NOT CAUSE AUTISM. Dr. Andrew Wakefield lied and his lie was heinous enough (he spread false information for his own gain) that The Lancet had to retract what was written (a big deal because lawsuits had been decided using the false information which created an entirely new headache for the legal system in the UK and the US) and his name was stricken from the British Medical Record (a.k.a. he lost his license to practice medicine in the UK). There is a lovely infographic which gives all of this information PLUS links.

4.) After one appointment, the child claimed he had been hit in the head by a hammer and Dr. Sears did not report it to CPS. He is a mandated reporter and if he heard something like this, he is required by the state of California (and every state in the nation) to report this to CPS and do an in-depth evaluation. He didn’t. That is a serious breach of protocol and could mean that the child (if he was being truthful) could be an abusive home and in danger. That’s lawsuit material right there.

An interesting response detailing why he’s being charged with gross negligence is here.

And yes, I know that this was not a quick take but I felt like this explanation needed to be presented. 🙂

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

{five favourites}: Miscellanea (LXXVI)

#5Faves

One

Seeing my community come together following the local shooting on Friday. (For those who don’t read my blog normally, the Cascade Mall shooting was local for me.) The small shrine at the mall sign is growing still, the vigil held on Monday night was very well-attended, and there’s even a prayer wall composed of two pieces of butcher paper at the college.

Sarai Lara, the 15 year old killed in the shooting, was a student at my town’s high school and the principal created a GofundMe account for memorial t-shirts for all the students. After only two days, it’s been fully funded and I feel really blessed to have gotten to be one of the donors.

Two

This fact-check of Monday’s debate from NPR. I like that they included a transcript of the debate and nested the fact-check blurbs into it so that you can read the transcript and see the various blurbs in context. (Props to Laura of Coptic Dad and Mom for bringing it to my attention.)

Three

This piece on Philip Yancey from HuffPo Religion. Apparently, I’m in good company in being baffled by evangelical support of Donald Trump. Yancey comes from a fundamentalist background and went more mainstream evangelical so I’m not surprised that he is not a fan of Trump. For an understanding of why I’m saying this, read What’s So Amazing About Grace? and Vanishing Grace.

Four

This piece on the value of being alone. Who knew that my need for “mama time” was such a good thing? 🙂

Five

Singing in my church choir. Getting to go sing for 60-90 minutes on Wednesday nights and on Sunday mornings is divine. (No pun intended.) Tonight involved some Mendelssohn, Holst, and gospel.

Go love up Bonnie, DeBalino, and the others.

The Simple Woman’s Daybook: September 25, 2016

For Today… September 25, 2016

Simple Woman's Daybook

Looking out my window… dark. It was in the low 60’s today and very nice.

I am thinking… about how to structure my study time this week.

I am thankful… that they arrested a suspect in the Cascade Mall shooting.

One of my favorite things… Homer being a snuggly kitteh.

I am wearing… jammies. Church clothes today were a black cardigan and jeans from Kohl’s, a black t-shirt from Old Navy, and my black flats. I ditched the flats and cardigan after church. I was also wearing my 49’ers necklace that Rebecca made for me so I could rep my boys at church.

I am creating… plans for Write 31 Days.

I am watching… “Lock-Up: San Antonio — Extended Stay”. I’m kind of addicted to police/jail/forensic shows.

I am hoping… the Giants make it to the wild card game!

I am learning… how to write and solve problems with T accounts in my Practical Accounting I class.

In my kitchen… Mom made Guinness stew tonight.

In the school room… Daniel continues to do well in his autism program.

Post Script… I love this piece on how to live through anything.

Shared Quote… I seriously feel like this is a fitting quote that refers to everyone who tells me that Daniel’s autism is due to us vaccinating him. (For the 1500th time, vaccines do not cause autism.) Let’s also not even get into the political applications of it…

A fitting quote for these days.

A moment from my day… I’m enjoying the various videos on bullet journals out there. I would love to have one but I am too much of a perfectionist and I lack the ability to draw a straight line.

Hosted by The Simple Woman.

The Cascade Mall Shooting

I honestly don’t usually weigh in on stuff like this but…

1.) I live in Skagit County (where Burlington is located).
2.) It’s my local mall and I was in the area earlier in the day.

I heard about it last night when my cousin’s wife Facebooked us about an hour after it happened. We’re one town south of there and on the southern edge of that town so we wouldn’t have heard any ambulances or police cars. When Mom told me about the Facebook mess, I turned on the TV and they reported that the Burlington-Edison High School football game was being evacuated and then my phone started buzzing with an alert from the community college that the campus apartments were being locked down. The college cancelled all classes today which I think is kind of excessive, given that the mall is 3 miles away and it’s highly unlikely that the shooter would be on campus when there are woods near the mall where they could hide.

People here are in shock because Burlington (and the town where I live) are small towns where this kind of stuff never happens. I was at Fred Meyer today, which is across the street from the mall, and there is still a lot of police tape, road blocks, and there’s a police SUV patrolling the parking lot. There were cars in the parking lot but I think they were all police detectives and cars of people who hadn’t been able to get them last night because it was an active crime scene. South Burlington Blvd., the street where the mall is located, is where most of the box stores like Costco and Home Depot are as well as an outlet mall that draws people from all over the area and even a few from across the border in British Columbia. If they wanted to pick a place with a lot of people, they definitely succeeded.

There are some people on Twitter making stupid comments about how they’re looking for a Hispanic male but it was probably a Muslim terrorist; and also how “Allahu akbar” apparently sounds a lot like “como estas?”. I’m trying not to flip my spit at them because seriously… PEOPLE DIED LAST NIGHT!!!! I can also say that it’s *HIGHLY* unlikely that the shooter was of Middle Eastern extraction but it’s totally possible that they were Hispanic because we have a pretty big Hispanic community up here. (It’s an agricultural area so we have a number of migrant workers who have settled here and a lot of churches here have Spanish ministries, including mine.)

So… if y’all could please keep those affected by the shootings as well as Skagit County in your prayers, I’d greatly appreciate it. If you want reliable details on what happened and what the latest news on it is, the websites for Seattle news stations are here, here, and here.

**UPDATE** A suspect has been arrested. Details here.

7 Quick Takes: First Week of School Edition

7 Quick Takes

— 1 —

My Practical Accounting class. I love the class so much that I made myself late for choir practice last night so I could get the worksheet of class examples to balance. (The fact that Mount Vernon has the crappiest way of doing street repairs and closures also made me late because a large chunk of Division was closed and I had to take Fir to Riverside to Fulton to some other street to Kincaid to get to my church on 18th.) I also worked through some things in my workbook that aren’t required just to give myself some extra practice.

— 2 —

My Excel class. The book and workbook are still MIA so we have some temporary online codes for the e-book and SNAP. I’m really wanting my print book because it’s kind of annoying to have to jump between the window with the e-book and Excel while working on projects and exercises.

— 3 —

Fitting in. I thought I’d be the oldest in a class of 18-20 year olds. I was wrong. My Practical Accounting class is a good mix of ages and I’m liking this mixture a lot. We do have some youngsters but also people my age and some who are older.

— 4 —

CCF. When I walked into the student center on Tuesday at noon, the Campus Christian Fellowship was tabling. (“Tabling” means that they had a table with information and a sign-up sheet for emails about activities.) I signed up to get emails on events and I’ll be heading to hang out with them for dinner and Bible study tonight. They also have a chapel service on Tuesday during the noon hour and I will definitely attend those as they seem like a nice break in my day.

Honestly, I’m looking forward to religious activities like this where I’m just going as “Jen” and not “Pastor Jon’s wife Jen who we expect to know everything about all that is happening despite the fact that we did not call HER as the pastor and she has her hands full with a full-time job or a kiddo with special needs”.

— 5 —

Prayer request. Please keep my dear friend Eileen and her family in prayer as she deals with the passing of her father. She is one of the deepest and wisest people and I hate that she is having to grieve, though she would be one of the first to tell me that it is a part of life.

— 6 —

The Skittles meme from Donald Trump Jr. In case you didn’t read my post from Tuesday, let me explain why Donald Trump Jr.’s Skittles meme is so horrific.

1.) Skittles are candy. Refugees are people. Wrigley, the maker of Skittles, responded as such to Trump Jr.

2.) Trump Jr. used the picture from a refugee photographer without said photographer’s permission. The photographer is horrified by how his picture was used and has emphatically said that Trump Jr. did not have permission to use it. Seriously, Junior. Didn’t your dad teach you not to take things without permission??? Oh wait…

3.) The idea behind the Skittles example originated with a children’s book by Nazi propagandist Julius Streicher. Lest you think I am making this up, the link to my source is here and Snopes.Com backs me up.

And for the record, I would totally eat a handful of Skittles and I would joyfully accept every refugee. SKITTLES ARE CANDY AND REFUGEES ARE PEOPLE, CHILDREN OF THE LIVING GOD WHO DESERVE BETTER THAN TO BE TREATED LIKE A DISPOSABLE COMMODITY.

— 7 —

Srsly?!?!? My backpack with my accounting book and working papers fell off the chair next to me at Starbux and the two people in my part of the restaurant gave me nasty looks even after I said, “Sorry.” Y’all, I’m sorry that my accounting book weighs more than Daniel does and that the sound disturbed you sitting there and drinking coffee. To be fair, the two of you are now having incredibly loud conversations with other people and I’m not giving you snotty looks. Try to show a modicum of compassion, m’kay?

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

{five favourites}: Miscellanea (LXXV)

#5Faves

One

Tim Hawkins’ “Hedge of Protection” bit. I have spit coffee out of my nose before when people have prayed for a “hedge of protection” for me because of this video.

Two

My boys winning tonight. It’s always wonderful when my boys (the San Francisco Giants) annihilate the Dodgers. #BeatLA

Three

My accounting class. I hated math. Let me make that more emphatic — HATED math. I got through Calculus by the skin of my teeth and swore I would never do anything else involving it once I ran screaming from Organic Chemistry. My Macroeconomics class in college had a little bit but it was just computation and a little bit of basic algebra.

Well… I discovered that I loved the accounting work I had to do at UPS-SCS when I worked for them and all the tax/records/reimbursement stuff I did as a pastor’s wife. I think it says something that I’m going to campus on my day off from class to curl up in the library and start my Practical Accounting homework early!

Four

My friend Gina. Girlfriend wrote an amazing piece on autism and suicide.

Five

Wrigley (maker of Skittles). Wrigley, maker of Skittles, weighed in today on Donald Trump Jr.’s odious Skittles analogy (which I am not sharing here because I don’t believe in posting hate on this blog):

Skittles are candy. Refugees are people. We don’t feel it’s an appropriate analogy. We will respectfully refrain from further commentary as anything we say could be misinterpreted as marketing.

By the way, the photographer who took the picture says that he is horrified that Trump Jr. is using the picture for his malevolent purposes because he (the photographer) is a refugee and Trump Jr. used it without his permission.

And for those who are ignorant as to why I’m making a big to-do over this, the origin of the Skittles analogy was a picture book in Germany called Der Giftpilz (The Toadstool) which was used to explain to children why it would only take one Jew to ruin the German people. The author, Julius Streicher, was hanged at Nuremburg for crimes against humanity.

Go love up Bonnie, DeBalino, and the others.