31 Days of Parenting Kiddos with Special Needs: Doctors

31 Days of Parenting Kiddos with Special Needs

Given that my kiddo had his ADHD appointment and flu shot on Wednesday and I had my flu shot/pneumonia shot yesterday, the subject of doctors is fresh on my mind. I thought I’d share some things I’ve learned in having to find doctor’s and specialists for Daniel. As always, your experience may vary.

[+] Do your homework. Generally, most medical practices have a website and they usually talk a little bit about the doctor’s education, what their passions are with regard to medicine, if they do anything outside of the clinic like medical missions trips, etc. Read up on all of this so you can ask intelligent questions.

[+] Look for doctors who can think out of the box a little bit. Daniel hates doctors. He HATES them and part of it is that he hates being stuck in an exam room or restrained for an exam. Dr. Phenomenal, his pediatrician at UC Davis, used to have them schedule us for her first appointment of the morning when part of the clinic would be empty. We’d go for a walk around the empty part so that Daniel could open/close doors to his hearts content and she and I could have a conversation about whatever was concerning me. We’d pop into empty exam rooms every so often so she could do things like check his ears or listen to his heart, but she was more than happy to let him run. In return, he was slightly better about her messing with him to check his ears.

Dr. Awesome, his pediatrician here in Washington, is similar in that her approach is not to mess with him unless she has to. She lets him play with the automatic paper towel dispenser and turn off the computer screen for her which probably makes him like her because he *NEVER* gets to do stuff like that when it’s just me in the room!

[+] Find a balance between respecting their education but also not letting them speak down to you. Remember that your technical degree or bachelor’s degree in the humanities is not equivalent to their medical degree. This means that while you can ask questions about that blog post you read on the Wheatbelly blog that talks about how all gluten is bad for us, they’re going to tell you that only around 1% of the population actually *HAS* celiac disease and the Wheatbelly people are quacks and you should *LISTEN* to them. (Dr. William Davis is a cardiologist, not a gastroenterologist. There’s a difference.)

By the same token, don’t settle for doctors being condescending to you. You know your kid and they need to treat you with respect, even if you come across as a hysterical mom. One of Daniel’s pediatric neurologists had a resident working under her who treated me like I could only understand one-syllable words. Later, I mentioned to the neurologist and her entourage that Daniel was starting an ABA preschool program and Dr. Condescending asked me what ABA was. The rest of the entourage was similarly clueless so the neurologist asked me to explain it to them. It was fun watching their faces when I told them that “ABA is a methodology of working with kids with autism in which you achieve the desired behavior by modifying the antecedent.” They looked at me as if to say, “oh crap… she has a brain!”

This is all for now. Leave me any questions you have.

31 Days of Parenting Kiddos with Special Needs: Blogger Spotlight on Kelly of “This Ain’t The Lyceum”

31 Days of Parenting Kiddos with Special Needs

It’s technically 12:06 a.m. on the 8th as I’m writing this but… today was kind of a crazy day with a doctor’s appointment (flu shot AND a pneumonia shot — my poor left arm and shoulder!, a meeting with my conversation partner at school, and me trying (in vain) to concentrate on my Excel classwork/homework so you get another “cheater post” on a blogger.

Why I’m spotlighting this blogger: Kelly is another one who seriously needs to move to northern Washington because I need her level of awesome in my life outside of blogging! We got to know each other through the “7 Quick Takes” link-up over on Jennifer Fulwiler’s blog and got to be good friends that way. (Kelly is now the hostest with the mostest of the link-up.) Her two youngest kiddos Fulton and Teddy have spinal muscular atrophy (SMA) and their level of care varies between the two of them. (Fulton is a weak Type 2 and Teddy is Type 2.) Both are in power chairs and it’s been entertaining to read about some of the more “interesting” ways that changes things. (Some parents put their kids in time out. Kelly parks them.) She has blogged very honestly and authentically about her life and how their diagnoses have changed things for her. Honestly, I wouldn’t even know about the existence of SMA if not for her blogging and being open about her life.

Some of the cool things she has done:

[-] Run 7 5K’s to raise funds and awareness for the condition

[-] Create a science and adventure club so that her boys can have something cool to do with other boys their age — I wish we lived nearby because I am the world’s biggest introvert and I would totally be there with Daniel! (Kelly’s son Fulton has suggested we travel there by jetpack. If only, Fulton. If only.)

Some fabulous posts on the subject that she’s written recently are here, here, here, and here.

And honestly, I love her not only makes me laugh when I *REALLY* need it and she keeps me organized, but also because she and her family have prayed me through so much in the last 5 years. There have been times when those prayers, as well as the emails from her, have been one of the few things that have kept me from being hospitalized with depression. I can’t put into words what those prayers and emails and her friendship have meant to me.

So please, go check her out!