31 Days of Parenting Kiddos with Special Needs: An Example of Being Thankful in the Midst of Crisis

31 Days of Parenting Kiddos with Special Needs

I’m trying to get my Excel homework done and uploaded so please accept a snippet of a post on Thanksgiving in the midst of the PICU from 5 years ago.

So I’m sitting on my fold-out bed in the PICU (Pediatric Intensive Care Unit) with Daniel. (He got my cold. Chest colds and him don’t mix well. He spiked a 102F fever and started having problems breathing. I think the rest of the story is self-explanatory.) In an effort to ward off the pity party that I’m so incredibly tempted to throw for myself, here are seven things I’m thankful for right now. Oh yeah… updates on his condition and what’s going on can be found here.

— 1 —

Daniel having Medi-Cal through SSI. It’s paying for what our insurance doesn’t. Given that our last PICU trip involved a 19 day hospital stay, this could add up pretty quickly.

— 2 —

My mom. She drove us to the hospital (we’re down with my parents) and stayed with us until they brought Daniel upstairs. This entailed reciting loads of poetry and nursery rhymes and helping to hold the little bear down while they did unpleasant things to him. Words can’t express my gratitude.

— 3 —

My evil twin. He brought Jon down with a container of Mushroom Risotto for me. Last time we had a PICU stay, he stayed with Jon and I through the worst night and hosted my parents on the weekends so they could be with Daniel and I.

— 4 —

Jon. He read to Daniel and came upstairs with us and prayed with him. He also brought me clean underwear and pajamas as well as part of my prescriptions. I’m loving the clean underwear, the jammies, and the Klonopin.

— 5 —

The speed of the ER peeps once the words “respiratory distress” were uttered. We were only down in the ER for 3.5 hours. (Normal is 4+.) We had a doctor checking him within 10 minutes. That’s impressive.

— 6 —

People praying. I put out the word to my people and there should be prayers ascending. Please also add yours in. We can’t get enough prayer right now.

— 7 —

Being ahead on NaNo. It’s meaning that I might actually make it to 50K before 11/30 this year.

The Simple Woman’s Daybook: October 23, 2016

For Today…

Simple Woman's Daybook

Looking out my window… dark. It was in the 60’s today with some clouds moving in a little bit ago and a short shower. My joints are feeling better now that the BIG weather systems have rolled on through.

I am thinking… about my week and what is on my plate in terms of school, Daniel, church and everything else.

I am thankful… I’m doing better in terms of this stupid virus than I was last Wednesday afternoon and evening.

One of my favorite things… when all my numbers balance on my Accounting homework. 🙂

I am wearing… jammies. Church clothes were my turquoise/black/white bokeh Easter dress with a black camisole underneath (Kohl’s), my black cardigan (Kohl’s), black tights (Target back from when we lived in Montana), and my black flats (Naturalizer). A couple people commented on how pretty I looked in my dress. (I usually dress up for church but my outfit today was apparently a big deal?) After church, I changed into my blue-green shirt from Old Navy and jeans from Kohl’s.

I am creating… formulas for my Excel submission assignment that is due tomorrow at 11:55 p.m.

I am listening to… “Cops: Reloaded” on TV. I’ll probably switch to various musical pieces in a bit.

I am hoping… to be over this stupid respiratory thing soon.

I am learning… about adjusting entries in Accounting.

In my kitchen… steak, potatoes, bacon caesar salad, and cookies with ice cream for dessert.

In the school room… Daniel’s “fall family meeting” went super well. He’s making progress and his teachers/aides/therapists are smitten with him. 🙂

Post Script… You know you have the respect of your LGBTQ friends when ones that are very anti-religious send you an article from a religious publication you like and ask for your honest thoughts on it. 🙂

Shared Quote… I have two for you today. The one on courage is from my friend Laura.

A lovely RFK quotation.
Laura's quotation on courage.

A moment from my day…

Closing Notes: When I was writing my piece on Friday, a piece of code that was supposed to bold something got inserted in a weird place and I didn’t find it until last night when I was reading over something. It ended up putting the last part of the second C. Everett Koop in bold type… a part that I think *ALL* of us need to read and re-read endlessly in this election cycle.

Well-played, WordPress. Good move, God.

Hosted by The Simple Woman.