Live PD. I have an addiction to cop shows and some friends turned me on to Live PD. My parents roll their eyes at it, but it keeps me entertained.
Answering G-tube questions. Reader mbmom11 left me the following feedback:
I’d be interested. I can’t imagine how it works to get a non-cooperative kiddo to sit still for a feed. And if the kiddo feels better after having been on feeds for a few days. Thank you for sharing your experience!
This is an easy answer: Daniel doesn’t mind feeds and he doesn’t have to sit still for more than one minute while I get him hooked up. The feeding pump and bolus fit in a small backpack so as long as he’s careful about the tube staying connected, he can do quite a bit while the feed is going on. Usually, we are on my bed and he is playing with his tablet.
I’ll get an entry showing the step-by-step process done one of these days.
Check-up. We had a bunch of check-ups and a feeding therapy appointment in Seattle on Tuesday and Wednesday. The good news is that Daniel gained more than they were hoping for, so they’ve cut the number of feedings per day from 3 to 2. This makes my life SOOOOOO much easier.
Minion update. My little black monster is getting bigger and being my snuggle buddy at night as well as when he’s not in berserker mode. I keep some empty reusable shopping bags in my room for him to attack and sleep in. Occasionally, he’ll be asleep in one with just his long black tail sticking out.
My mom keeps commenting that his tail is 3 inches too long and his ears are too big. I keep reminding her that he uses his tail for balance when he jumps from the table to the counter.
Health System Portals. My local health system has an Internet portal that can be used to email doctors, send in prescription refill requests, etc. It’s a wonderful thing because I can actually have conversations with my health providers over it and it means that there is a record of communication.
When we were at Seattle Children’s this past week, they mentioned that they had one and I just about jumped for joy. It is going to be so helpful to not have to play message tag with providers there, and I think this will be useful for autism and g-tube stuff this fall.
Language-learning websites. I just want to highly recommend Duolingo again if you want to learn a language. I’m loving the site for my Spanish studies this summer, I’m using to review my French, and I’m even dusting off my Hebrew! (Pretty sure this is going to work better than my Hebrew class in seminary did!) I can’t wait for their Arabic course to hatch!
Tetelestai. A prayer for these days…
Into your hands, O merciful Savior, we commend your servant, John McCain. Acknowledge, we humbly beseech you, a sheep of your own fold, a lamb of your own flock, a sinner of your own redeeming. Receive him into the arms of your mercy, into the blessed rest of everlasting peace, and into the glorious company of the saints in light. Amen.
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