Looking out my window… smoky. We’ve got smoke coming in from all directions and it’s cloudy with a yellowish tint. My throat has been really aggravated by the air, but I guess it’s the new reality thanks to climate change creating drier summers.
I am thinking… about the metaphorical spinning plates I have on sticks that I’m balancing en pointe on one foot. In other words, I have a number of things demanding my attention that I am trying to balance, and I’m feeling the stress of it all.
I am thankful… Daniel’s incision does not seem to be infected per the ER doctor last night and the surgeon I spoke to on the phone this morning. I’m still keeping a close eye on it until we have our post-op appointment with general surgery on Tuesday.
Shared Quote… “While Christians tend to turn to Scripture to end a conversation, Jews turn to Scripture to start a conversation.” – Rachel Held Evans, Inspired: Slaying Giants, Walking on Water, and Loving the Bible Again
A moment from my day… our choral prelude this morning:
I am thankful… for my favorite vet happening to be at the clinic today for a staff meeting and crashing Minion’s appointment with my other favorite vet. It was wonderful watching Dr. Fischer feeding Greenies to my little demon one by one out of her hand while Dr. Matt examined him and did the shots. (I cannot say enough positive things about Chuckanut Valley Veterinary Clinic. They caught Jethro’s thyroid tumors in time to treat them, gave Homer another week of life, and love my little black monster so much that he has groupies when he comes in for vet visits.)
One of my favorite things… my black beast. I’ll miss him while I’m down at Seattle Children’s with Daniel.
I am wearing… jammies. Clothes today were a charcoal shirt from Old Navy (I have three) and jeans capris from Kohl’s. I have such a short inseam that my capris are more like clam diggers on me. #shortpeopleproblems
I am creating… a packing list for the hospital.
I am reading…Inspired: Slaying Giants, Walking on Water, and Loving the Bible Again by Rachel Held Evans
I am hoping… all goes well with Daniel’s surgery on Wednesday.
I am learning… all about G-tubes.
In my kitchen… I had a turkey florentine meatball from Haggen for dinner tonight.
In the school room… one month until school starts. Daniel can’t wait.
Post Script… the page for a US agent for International Pen Friends is here. I’ve been a member for close to 30 years and I cannot recommend them highly enough for anyone who wants to find their kids a pen pal or who wants to find one for themselves.
Shared Quote… “The Psalms are, in a sense, God’s way of holding space for us. They invite us to rejoice, wrestle, cry, complain, offer thanks, and shout obscenities before our Maker without self-consciousness and without fear.” ? Rachel Held Evans, Inspired: Slaying Giants, Walking on Water, and Loving the Bible Again
A moment from my day… One of my favorite choirs doing one of my favorite Bach pieces.
G-tube take #1. We saw Daniel’s nutritionist on Monday. He had lost about 1 lb in the last two weeks, but that could also be as a result of clearing out some constipation. (Pleasant topic of conversation, I know.) It was a smaller drop than the last time so no immediate hospitalization, but it created more of an impetus to get moving on the G-tube. R will be doing his inpatient nutrition care, so at least I know part of my team already.
G-tube take #2. We met the anesthesiologist (love her!) and surgeon (really love her!) on Tuesday. We like both of them. The only problem: the surgeon wants him to be inpatient for a week prior to up his nutrition to give his incision a better chance of healing. That throws a wrench in my life, but not a huge one. I’m not taking any in-person classes this summer and I’ve lived on hospital units with this little monster before, so it’s doable. The only downside is missing Minion a whole lot because I obviously can’t take him with me.
G-tube take #3. Daniel’s gastroenterologist (Dr. No) called yesterday and wanted to admit him THAT AFTERNOON. My response: “No.” When I was questioned as to why I would question her ruling, I explained that I had a doctor’s appointment today (Thursday) that I had been waiting for 6 months and that would impact my ability to function if I didn’t keep it. Dr. No also explained that they would be starting out with him doing nutrition by N-G tube, which is just about the stupidest idea on the planet… which has been pointed out by me, the physician assistant working with Dr. No, Daniel’s nutritionist R, Daniel’s surgeon, Daniel’s regular pediatrician, and just about anybody who has spent more than 15 minutes with him on a meh day.
I may or may not have excavated a new rear sphincter opening for her during our final conversation yesterday (yes, there were several — I don’t think she likes me right now and I couldn’t care less), at which point I **FINALLY** found out that he’ll be admitted on Saturday afternoon and where I get to go for this. (Seattle Children’s is YUGE… bigly even!) She also told me that they *sigh* will have a back-up plan (a PICC line) and enumerated the risks of said plan. (While she was pontificating, I was rolling my eyes so hard at the phone that they fell into the floor of my car because I am familiar with PICC lines… especially since my kid HAD ONE FOR TWO MONTHS in the NICU and my former father-in-law had one for several years.)
I should point out that Dr. No is not incompetent — she’s quite brilliant — but she doesn’t quite get autism well and doesn’t understand that my child is more of a cranky 3-4 year old than a 9 year old, so he isn’t going to be cooperative and leave his N-G tube alone.
MY appointment. I finally got my neurology consult today and it was… intense. My neurologist is lovely (though very high energy and intense) and gave me credit for having a mind (yay!). She’s doubling my migraine preventative, sending me to sleep medicine (I very likely have sleep apnea), putting me on magnesium, and a few other things. My only criticism is that she told me that my stress level would improve if I meditated… which makes me stabby because my stress level would improve if I wasn’t largely managing my medically interesting kiddo with special needs on my own while also trying to finish my degree and be a functional adult.
Cat take #3. Even with the arrival of Minion, we are still really heartbroken over losing Homer on Sunday and there are still tears shed almost every day. Homer was Jethro’s littermate, became my snuggle buddy when I moved in with my parents in October 2015, and was my homework helper. Minion isn’t a replacement for him and prayers are needed for us as we deal with our broken hearts.
I will say, however, that adopting the little beast the day after losing Homer is helping our hearts a lot. He has taken over Homer’s sleeping spots and he is a snuggly little monster.
Cat take #4. My mom just came in holding a little black kitten and asked if I had mentioned to him that the “no kittens on the table” rule applied to the kitchen table as well as the dining room one. Apparently, Minion was disavowing knowledge of that part of the rule.
Refer to title please. 🙂 My hometown boys (the Warriors) SWEPT the Cavs in the NBA Finals. That’s three NBA Championships in four years. 2016 (Cleveland’s ONLY championship win) was indeed a one-off (and a very last minute victory given that they have ONE good player).
Wow. This past Wednesday (the 6th) marked my last in-person class for my program. Everything else is either online or part of my internship this fall. It’s bittersweet because while I’m happy that the quarter is winding down, I’m going to miss my classmates. We’ve been together for 1-2 years (depending on where people are in their programs)
Daniel update. His gazzazzapop is giving him a weight gain of at least 1 lb per week, which is good as it is taking the threat of an NG tube off the table. He’s fighting against having to drink it, but he doesn’t get a choice at the moment because they are the only calories he is currently getting. (The little beast stopped eating solid food.)
Integrated projects. I turned my first Capstone Case Study in on Sunday. I was talking to my instructor on Wednesday while she was grading them and she told me I had done very well.
My response: “By your standards or mine?”
She laughed. (I had gotten 109.5 out of 110, which is excellent by her standards while I was bugged by the 0.5 point I had lost.) She created an optional discussion post where we could post part of our case study (in this case, a flier for a yurt tour) and it has been fascinating to see what people put together for it.
Mea culpa, Lord. Sleep deprivation and stress have led to me feeling like I was going to have a panic attack multiple times this week. On Wednesday, I came home after my tutoring shift and did noon prayer (about 2 1/2 hours late) which was helpful. I also felt like the Spirit was reminding me that I need to pray about things a lot more often. (Admittedly, my prayer life sucks right now.)
God speaking to me through music. One of the way God breaks through the armadillo shell I seem to have around my soul these days is music. Unapologetically Episcopalian shared this piece on their Facebook page on Wednesday afternoon and it was needed.
Update on the kid. Because I am a slacker mom, I forgot to schedule my beastling for a weight check today (it *IS* technically Friday). If I can’t get him in briefly at our pediatrician up here, I’ll just stick him on a scale at home and see if he’s gaining appropriately.
He’s drinking his gazazzapop (“gazazzapop” being a word my grandpa used for a liquid without a name) willingly and I can’t wait until summer when we can space it out over the course of a day, rather than having to fit three boxes in between when he gets home from school and when he goes to sleep.