To Paul Ryan and His Minions

Yesterday, I was on my way to Target with Daniel to pick up some prescriptions and a press conference with Speaker Paul Ryan came on NPR. He talked about how the Affordable Care Act (a.k.a. “Obamacare”) has ruined the country and how he and Congress are sending the president a message about what the people of America think of the plan. I was so thankful that the only thing on my stomach was my latté because I was having to fight not to throw up from sheer anger and nerves. In fact, I am *STILL* completely furious 24 hours later and was going to write this post last night but couldn’t find the words in the midst of my abject fury.

So… here is my letter to Paul Ryan.

Speaker Ryan,

You and your party finally succeeded after 60 votes to pass a measure to repeal the Affordable Care Act, which was 60 votes too many and wasted, at $30 million per vote, $1.8 billion. Guess what? The president is going to veto it and your people do not have the 2/3 majority needed to override the veto so pretty much you just wasted another $30 million of taxpayer money. So good to know that my tax payer money is being well-spent in your effort to further the toxic partisan environment in the federal government.

However, what angers me most is not that you wasted the money but that what you are doing affects me very deeply. You see, this is who you voted to kill when you voted each time:

The first time I got to hold Daniel.

That’s me holding my son Daniel for the first time on April 25, 2009. He was born 10.5-11 weeks early when I developed HELLP Syndrome and had to have an emergency c-section to save my life. If I had not had a doctor that caught it and got me to a hospital with someone who could operate and who could handle the severity of my case, Daniel and I would have both been dead in a matter of hours. Because of the HELLP Syndrome, I have autoimmune issues and have a severely elevated risk of complications should I ever have any more children. The painful part: nobody knows why exactly it hits or how to prevent it and the only cure is to deliver the baby at whatever gestational age it is and hope that the kid can make it. I don’t smoke, drink, or take any illegal drugs and I ate a completely healthy diet while pregnant so it is not like I brought this on myself.

Why does this apply to the Affordable Care Act and your efforts to repeal it? Because of provisions of the Affordable Care Act, my son Daniel can never be denied insurance because of his traumatic birth and the conditions that resulted from his prematurity. Insurance companies cannot charge him higher rates. This is a good thing because we have had three more hospitalizations in the last 6 1/2 years, one of which almost resulted in us losing him when he coded right in front of me. Speaker Ryan, have you ever watched your child being attended to by medical professionals who are in a high state of panic, knowing that in a matter of seconds your child could die if what they are doing is not successful? Have you ever had to sign paperwork to put your child on ECMO, the heart-lung bypass, so that maybe with some rest, their heart and lungs might not fail? Have you ever lived at a hospital for three weeks, getting a shower once every four days, sleeping on a pull-out recliner, and having to have clothing and clean underwear brought to you because you cannot leave the hospital? I am guessing that you have not because if you had, you would not have voted the way you did.

This is Daniel now:

Daniel in November 2015

He did survive that hospital stay and while he does still have delays from prematurity and he is autistic, he is a happy, smart, and sweet-natured child who smiles at everyone and lights up every room into which he walks. His speech has exploded in the last year thanks to a school autism program and I have hope of him eventually being mainstreamed into a regular classroom someday. He is the embodiment of the Affordable Care Act.

As for myself, the Affordable Care Act has meant that Daniel’s traumatic birth and the complications that arose cannot be held against me when buying insurance. Insurance companies cannot charge me higher rates for being female, cannot attach prohibitively expensive pregnancy riders onto my plan, or deny me lifesaving prenatal and maternity care should I have any more children. It means that I no longer have to choose between buying food to feed myself and my son or paying for the medicine that both of us take to keep us alive. Tell me, Mr. Speaker, am I an example of how the Affordable Care Act has failed?

For every person that has complained about their insurance costs rising, there are one hundred stories of people like me who are alive because of the provisions of the Affordable Care Act. Even some of my diehard Republican friends, at least the ones who are not engaging in partisan bickering, agree that it is a good piece of legislation and that it is a wise use of legislative and government resources. Many of them are now able to have health insurance whereas before they were having to go without insurance and leave chronic conditions untreated as they had no access to healthcare. Are they an example of how the Affordable Care Act has failed?

In 2012, I was relieved that President Obama was re-elected, not because I hated you or Mitt Romney, but because the two of you winning the election had the potential to have a catastrophic effect on my life. For many of your supporters, the President’s victory represented an affront to their values or a mere inconvenience to them. For me, the President’s victory meant that my son and I would be allowed to live.

Speaker, you can play your partisan games and engage in offensive politicking as much as you want with others; but God help me, you will not play these games with my son.

7 Quick Takes: Islamophobia, Snark, and Gifts That Keep On Giving

7 Quick Takes

— 1 —

Positively sickened by this. So, people are smashing the windows of a Muslim family in Plano, Texas every night starting 6 weeks after they moved into their house. I am so sickened by the actions of the people doing this. I mean, what the [insert expletive of choice] is wrong with you idiots?!?!?!?!? Apparently, we’ve learned nothing from history at all.

I wish I lived in Plano so I could go help clean up the broken glass, start a GoFundMe campaign to replace the windows, and maybe even stand outside the house with other people to guard the family.

— 2 —

True faith. While Trump and his minions have been spewing dissension and hatred, Muslims in San Bernardino and across the country banded together to raise $100,000 for the victims of the shooting. It’s not surprising that they would do this — charity is one of the tenets of their faith. When I was taking my Islam class 14 years ago, we had dinner with the young adult group of a mosque in Detroit who was raising money and collecting toys for Toys for Tots. Christmas isn’t their holiday but they were helping out anyway.

Having spent time with various Muslim communities in Detroit and knowing the Muslims with whom I grew up, I would rather hang out with them any day of the week over some of the Christians I know and definitely over the people at the church where we worshiped in Detroit on that Sunday morning. Every mosque we visited was warm and welcoming to us, plying us with Turkish coffee and pastries even though they were in the middle of Ramadan and fasting. They asked us with interest about what we were doing and told us stories about their lives in the lands from which some of them came and about their lives as Muslims. The church we attended were very cold to us and talked openly about how they don’t want to engage in conversations with their Muslim neighbors.

— 3 —

For those who come here for the snark… The 2015 Hater’s Guide To The Williams-Sonoma Catalog is out. To be fair, the peppermint candy looks fabulous (one of my weaknesses is mint and chocolate) and I’d love the cookie cutters or the cookie press but… the rest of it caters to pretentiously rich people who have no understanding of what things actually cost in the real world and who have the money to throw away on this stuff.

— 4 —

Fibromyalgia memes. I saw this list of 44 memes that nail what it’s like to have fibromyalgia. My favorites are #7, #10, #13, #14, #19, #23, #25, #28 (OMG… THIS ONE!!!!), #36, #37 (I need this on a t-shirt), #38, #41, and #43. They also need one that says something along the lines of “No, I can’t just take some Tylenol. This is nerve pain.”

— 5 —

The Onion for Catholics. If you haven’t heard of Eye of the Tiber, it’s a satirical site like the Onion except that it’s about the Catholic Church. Example: Vatican To Project Microsoft Bubbles Screensaver Onto St. Peter’s Whenever Basilica Not In Use which pokes fun at the nature slideshow that was projected onto St. Peter’s Basilica a few nights ago. There’s a fabulous interview with the person behind it that I recommend reading.

— 6 —

Gift that keeps on giving. If you’re looking for the perfect gift for someone in your life who is into finance, social justice, and for whom it is hard to find a good present, consider a gift card for a a Kiva loan. You read through a bunch of profiles and pick one that speaks to you. That person is loaned $25 for their small business/personal improvement and they pay it back over time. Once it is paid back, you have the option of Kiva cutting you a check for the $25 or the option to re-loan it. I think I’ve made close to 20 Kiva loans and most of them are re-loans of the original $25. My day is seriously made every time I get an email saying that I have $25 in Kiva credit because that means I get to make another loan.

— 7 —

Another gift that keeps on giving. Kelly mentioned Heifer International in her post on gift giving that matters and Connected in Hope (which also inspired the above Quick Take). I highly recommend them as well. You buy an animal or shares of an animal and it gets donated to someone in the Third World along with the training for that animal/plant/livestock. The animal provides milk/fleece/eggs/whatever and the money from that pays for school fees or medicine or whatever the family needs in terms of living expenses. When they reproduce, the offspring is given to someone else to pass on the gift and to change the original recipients into donors, a change that gives them some pride and self-worth. In the last few years, they’ve also given people the option of contributing to basic needs in the way of things like water, nutrition, and stoves. I love them because they’re all about empowering people to get out of poverty. Their gift catalog is here.

For more Quick Takes, visit Anabelle, our guest hostess with the mostest, at Written By the Finger of God.

7 Quick Takes: The Inland Regional Center Shooting

7 Quick Takes

— 1 —

Why I am focusing on this today. This shooting affects me particularly strongly because Daniel has received services from the various Regional Centers in the parts of California in which we have lived. They help parents like me get services for their special kids. I would honestly have a hard time being able to do anything without them. (Here is my post on this from yesterday.)

— 2 —

My fears. When I heard where the shooting took place, my first thought was wondering how many kids and developmentally disabled adults were killed. Seriously, it could have been Daniel and I in that building if we had lived one town farther east on the 210. We were part of a different Regional Center because we lived in Los Angeles County whereas the one where the shooting took place serves San Bernardino and Riverside Counties. The people who work there are all social workers who try and make sure that kiddos like Daniel can thrive and that means that they meet with the kids and parents at the center. I know the one we went to was a warren of offices and conference rooms so it is completely possible for someone to go in and hide in there. I’m also not surprised that the Health Department was holding a Christmas party there because they have a lot of conference rooms and meeting spaces.

— 3 —

The fact that the shooters were Muslim. This saddens me even more because it could be throwing terrorism into the investigation which could be a complete red herring. There are Muslims who commit crimes like these but there are also non-Muslims who do as well. My heart goes out to the Muslim community of San Bernardino and I pray that nobody “takes matters into their own hands” as people are wont to do.

— 4 —

Gun control. I was in middle school when the 101 California Street shooting happened and I remember the Brady Bill being passed. Believe me, it makes an impression when you’re seeing people fleeing a building on local TV. (I live about an hour southeast of San Francisco depending on traffic.) I’m absolutely livid that we cannot get meaningful gun control legislation passed, especially after the Bush administration failed to keep the Federal Assault Weapon Ban from expiring.

— 5 —

Mixed motive. As I’m writing this on Thursday afternoon (as opposed to Quick Take #3 which was Wednesday night), there is speculation that Syed Rizwan Farook (the male shooter) had ties to terrorists and that he went to Pakistan and came back with Tashfeen Malik (his wife). It is possible that he was radicalized in Pakistan… or he could have just gone there because he is of Indo-Pakistani descent and he wanted a wife who was from the same country/ethnicity. It is possible that he could have just been really infuriated with his coworkers over something. I agree with President Obama’s take that it could be both terrorism and workplace violence and this complicates things.

— 6 —

Why so violent? Another angle to this which I know my NRA-loving friend John would want me to mention is WHY Farook reacted so violently if this was a workplace issue. I know I’ve had coworkers who drive me absolutely crazy but I haven’t acted on any urges to take a gun and blow them away.

— 7 —

How common this is in America. This image from Facebook says it all:

My thoughts on the frequency of these shootings.

Even Fox News reporters are commenting on this.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: Refugee Takes, School, and Choral Evensong

7 Quick Takes

— 1 —

Refugee take #1. The French are suggesting that we use “Da’esh” instead of ISIS. This is why. It actually makes sense.

— 2 —

Refugee take #2. Not all Muslims agree with Da’esh. (The vast, vast majority find them despicable.) The closest Muslims to what they believe are the Wahhabis who control things in Saudi Arabia. This piece explains why. It’s also why Saudi Arabia has not taken any refugees thus far — they don’t take Christians (the country is officially 100% Muslim and those who convert to something else face death) and it’s a Sunni Muslim theocracy so any Shi’a Muslims are out of luck.

— 3 —

Refugee take #3. I have seen some pretty foul behavior from my fellow Christians over the whole refugee issue in talking about how we should not welcome refugees to the USA and this is one of those times when I actually *AM* calling out people in my own life for their behavior. (I’m usually pretty reserved, but not on this subject.) Jamie the Very Worst Missionary actually has a pretty good take on all of this. Ditto with Ryan Dueck.

I think my friend Sarah of Fumbling toward Grace put it best when she quoted something she had read at the beginning of the refugee crisis (and she would like me to clarify that she can’t remember who said it):

“We don’t help refugees because they are Christian. We help refugees because we are Christian.” (emphasis mine)

— 4 —

Refugee take #4. To maybe shut a few people up and remove the complete atmosphere of unfounded fear that seems to be pervasive, here is what *ACTUALLY* happens with refugees and immigration from an *ACTUAL* immigration attorney.

Now can the fearmongering stop?

— 5 —

The school sitch. Daniel *FINALLY* started school up here this week. He was a little nervous on Monday (his first day) but when he saw the toys, he looked at me and said “bye!” which was my cue to leave. He seems to like his class, his teachers, his aides, and his therapists thus far and I’m hoping it remains a good school and a good program for him.

— 6 —

Choral Evensong. We have a new rector at my church in San Jose and she is a fan of choral evensong so we’re doing it for the Thanksgiving service next Tuesday night. If you’re in the area, let me know and I’ll give you the details!

— 7 —

Gary Haugen’s TED talk. Fifteen years ago, I heard Gary Haugen of International Justice Mission speak at Urbana 2000. It changed my life and the way I look at a lot of the world. (You can watch it here.) He’s done a TED talk. Go watch it! Do it now!

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: School Enrollment Woes, the Latest Disrespect Toward Black Women, and Books to Which I Look Forward

7 Quick Takes

— 1 —

Srsly?!?!?!?! San Jose Unified sprung a new requirement on me: a TB test for Daniel. Apparently, they (not every other school district) require it of kids transferring from outside the district. I get it (sort of) but it seriously would have been nice to know that BEFORE TUESDAY. We found a CVS Minute Clinic and got it done this week but it knocked off our ability to enroll Daniel by a few days.

— 2 —

Prayer Request. I have an enrollment appointment with the district tomorrow morning at 8. Could y’all please pray that they’re happy with all my documentation (especially since Daniel’s withdrawal form may not be what they want)? He has to be enrolled before they will even look at his IEP and determine placement. I’m also praying that wherever he gets assigned has an autism program because a special day class (SDC) doesn’t guarantee that the teacher has any experience with autism.

— 3 —

WTF?!?!?!?!?!?!? Here’s the video and commentary on the young African-American woman who was thrown to the ground and handcuffed in South Carolina. She had just been orphaned and was acting out by refusing to put her cell phone away or let the teacher confiscate it. Still, that was no excuse to have the police called, be thrown in her desk to the floor, and then be dragged across the room with her desk to be handcuffed. Seriously, I question the humanity of anyone who can justify all of that!

— 4 —

Sage advice. Dear Abby answered a non-believing teenager in Alabama who was pondering becoming Christian to fit in. My take on her answer: brilliant. (HT: Friendly Atheist)

— 5 —

Seriously looking forward to this! I’ve known Maria through various channels for a couple years now and am *seriously* looking forward to her book on saints. I encourage you to check it out.

— 6 —

Fighting the fearmongerers. There is a new book called The Fear Babe: Shattering Vani Hari’s Glass House that takes down the Food Babe. Given that I’ve seen only a handful of Hari’s schlock and she makes me stabby, I’m seriously looking forward to reading this.

— 7 —

Why I don’t watch daytime TV. My mom told me today that there are some anti-vax groups that are taking out ads on daytime TV to spread their deceit.

Because, you know, none of the people in these groups actually *REMEMBER* a world with measles outbreaks or serious widespread fear of polio because… THEIR PARENTS VACCINATED THEM!!!!! Why the fur would anyone *willingly* choose to subject your kids to these diseases?!?!?!?!?!?

VACCINATE YOUR FREAKING KIDS!!!!

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: 31 Days of Writing, the Pope Meeting with Kim Davis, and Cat Piles

7 Quick Takes

— 1 —

31 Days of Writing. Because I obviously have nothing better to do with my life, I’m taking part in 31 Days of Writing. I happened to see the button on Bobbi’s blog and spontaneously decided to go for it. My topic: a month of gluten-free life. Keep checking the sticky post at the top of this blog every day this month for my ruminations on my experiment of giving up gluten.

— 2 —

It’s about freaking time! Fibromyalgia is now recognized as a legit diagnosis in ICD-10 codes for healthcare billing. It’s so nice that the medical community finally realizes that I’m not making all of this up and have a legit reason for how crappy I feel much of the time.

— 3 —

Why I do not stand with Planned Parenthood. 10 years ago, I would have been horrified that people were trying to defund Planned Parenthood. Now, I say, “do it.” Why is this? I wholeheartedly believe that if government funding was cut, Planned Parenthood could survive. All those services they claim to do that aren’t abortions are ones the community health clinics provide… for free. No Planned Parenthood site owns a mammogram machine so the claim that they do breast cancer screenings is pretty much shot there.

The largest reason that I fail to stand with Planned Parenthood is that I believe abortion is murder, pure and simple. I have friends who have had them and every one of them (and I’m talking a very diverse group of women that covers multiple ethnic groups and religions) regrets it. I’ve had people tell me that they believe in abortion in the event that the mother’s life is at risk and as someone who was in that situation 6 1/2 years ago, I want to smack those people upside the head. If the mother’s life is at risk, they do an emergency c-section to deliver the baby but they don’t intentionally kill it in the process. If it’s below 24 weeks gestation, it will probably live for only a few minutes but they still give the kid a chance at life.

One thing that causes me chills is the fact that when blood tests came back elevated for Down Syndrome, everyone jumped into action to get me a 3-D ultrasound as fast as possible so that they could do amnio and abort because, OMG, why should I be saddled with a kid with Down Syndrome? I made it very clear that I was in favor of the ultrasound but that I’d be keeping Daniel regardless of what they saw. Obviously, he doesn’t have Down Syndrome but he’s got a bunch of other things and I know there are people out there who would comment on how it’s too bad that I couldn’t abort him. Those people simultaneously enrage me and make me sad. It is insanely hard to have a kid with special needs like Daniel and yes, it has meant the death of some of the plans I’ve had for my life. Guess what? Those plans needed to die because my life is a far better place with Daniel in it.

— 4 —

Pope Francis and Kim Davis. The Vatican is not denying that the Pope met with Kim Davis while he was in the States last week and I’m thinking that someone brought her to DC, Washington, or Philly because he sure as heck did not go to some podunk place in Kentucky. I highly doubt he knew who she was and while he told her to keep on keeping on, I’m pretty sure it was because he was told on the spot about her “conscientious objecting” and it being a matter of “religious freedom”. (Both claims are loads of bull feces but none of it surprises me.) I find this piece from America Magazine as a good source for interpreting this alleged event.

And for the morons who are making this into the Pope supporting Kim Davis and going off about how this legitimizes her case, I have this to say to you:

Just stop talking.

— 5 —

More on Kim Davis. Someone told me that the Family Research Council gave her an award. Here’s the story. My thoughts on the matter: people do realize that this is the group that employed child molester and adulterer Josh Duggar as their spokesperson, right? I kind of doubt their qualifications to make decent judgements.

— 6 —

Why has nobody bought this for me?!?!?!?!? This game is like Jenga but has you stacking wooden cats instead of blocks. I think I seriously need this.

— 7 —

Because Simcha. Here’s another fabulous piece from Simcha Fisher on how your family is not your brand. Perfect people with perfect families are utterly boring. In fact, people documenting their perfect family meals and perfect family celebrations kind of make me suspect that the blogger is hiding something. I understand the need to put one’s best self forward (and there are a number of punches I pull on this blog) but people who try to make themselves look like “mother of the year” are people whose blogs I’m liable to skip over in the small amount of time I have to read blogs every day.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

The Simple Woman’s Daybook: September 27, 2015

Simple Woman's Daybook

FOR TODAY September 27, 2015

Outside my window… dusk. It was in the 90’s today. I’m looking forward to seeing the blood moon tonight.

I am thinking… about what needs to happen this week.

I am thankful… that the first time I’ve lectored in 5+ years went well. (The ELCA church I attended in West Covina didn’t put me on their rotation in 2010 and Jon’s last parish also never did, probably because of it involving Daniel running loose or the ushers having to deal with him.) I got a lot of compliments on it, which is totally *NOT* the point of doing it but still was nice.

In the kitchen… gluten-free mac n’ cheese for me and a smoothie as dessert. I need to pick up some more spinach tomorrow for them as I have a feeling I’ll be having a lot of them in October.

I am wearing… dark blue-green shirt (yay Old Navy fitted tees!) and black capris.

I am going… to be reading the transcript of the Pope’s speech at the World Meeting of Families when I’m done with this. I’ve been reading transcripts of all the Pope’s addresses this week because I don’t have a TV and I can’t be online most of the time that Daniel is home.

I am wondering… about what the *REAL* reason is for John Boehner resigning. I’ve heard everything from the Pope’s address of Congress being a Nunc Dimittus call for him to him trying to end on a high note because his position as Speaker of the House is in jeopardy. Maybe a combination of both?

I am reading… Furiously Happy by Jenny Lawson. I finished Post Traumatic Church Syndrome by Reba Riley and really enjoyed it. It ended up being the deciding factor in me spending October gluten-free.

I am hoping… to get a call back about my biopsy results from the endoscopy/colonoscopy this week.

I am looking forward to… the weather cooling down. I hate heat and am so completely *OVER* temps in the 90’s. It’s freaking autumn already!

I am hearing… whatever my father-in-law is watching through our two bedroom doors.

A Daniel story for today… the little monster kept stealing my sun hat and trying to wear it with his soccer uniform yesterday.

Around the house… my mother-in-law is cleaning the kitchen and making biscuits while I put Daniel to bed.

A favorite quote for today… “When I went on my first antidepressant it had the side effect of making me fixated on suicide (which is sort of the opposite of what you want). It’s a rare side effect so I switched to something else that did work. Lots of concerned friends and family felt that the first medication failure was a clear sign that drugs were not the answer; if they were I would have been fixed. Clearly I wasn’t as sick as I said I was if the medication didn’t work for me. And that sort of makes sense, because when you have cancer the doctor gives you the best medicine and if it doesn’t shrink the tumor immediately then it’s a pretty clear sign that you were just faking it for attention. I mean, cancer is a serious, often fatal disease we’ve spent billions of dollars studying and treating so obviously a patient would never have to try multiple drugs, surgeries, treatments, etc., to find what will work specifically for them. And once the cancer sufferer is in remission they’re set for life because once they’ve learned how not to have cancer they should be good. And if they let themselves get cancer again they can just do whatever they did last time. Once you find the right cancer medication you’re pretty much immune from that disease forever. And if you get it again it’s probably just a reaction to too much gluten or not praying correctly. Right?” — Jenny Lawson, Furiously Happy

I love this particular quote so much because it *VERY* accurately illustrates the crappy logic people like me get from people who think that we can just magically snap out of our depression by focusing on the happy things in our lives. (For those new to this blog, I live with both depression and an anxiety disorder. I’m also a recovering self-injurer.) As Jenny has blogged many times, “depression lies” and no number of thoughts of happy things in our lives can move us past the sheer gloom and pain we feel. The cancer analogy is pretty close to home for me because I live with my father-in-law who is fighting cancer.

One of my favorite things… air-conditioning. I couldn’t survive down here without it.

A few plans for the rest of the week: walks, core work, probably some weights to make me LBD-ready for the fall fundraiser at church, Bible study on Wednesday, PT on Thursday, soccer practice for Daniel on Thursday, date night at some point, and Daniel’s soccer game on Saturday.

A peek into my day… The kiddo and I on Saturday.

Daniel and I at half-time on Saturday.

Post Script…

To the morons obsessing over various iotas of the Pope’s visit:

You do realize that flipping out over him not outright mentioning abortion in various speeches or having conniptions over Mo Rocca lectoring at Madison Square Gardens or any of the other crises I’m hearing about makes you look like fruitcakes, right? Nobody in my world believes that the Pope failing to mention the word “abortion” means that the prohibition against it has been dropped from Catholic social teaching. As for the Mo Rocca thing, you’re in a pretty select group of people if you know what I’m even talking about and can cite chapter and verse of Scrpture and the Catechism as to why this is a BFD.

If you want to evangelize the world, try being people who who show love instead of people who make me want to run screaming away from the banks of the Tiber where I’m sitting.

Snuggles,
Jen

Hosted by The Simple Woman.