7 Quick Takes: G-Tube Prep Edition

7 Quick Takes

— 1 —

G-tube take #1. We saw Daniel’s nutritionist on Monday. He had lost about 1 lb in the last two weeks, but that could also be as a result of clearing out some constipation. (Pleasant topic of conversation, I know.) It was a smaller drop than the last time so no immediate hospitalization, but it created more of an impetus to get moving on the G-tube. R will be doing his inpatient nutrition care, so at least I know part of my team already.

— 2 —

G-tube take #2. We met the anesthesiologist (love her!) and surgeon (really love her!) on Tuesday. We like both of them. The only problem: the surgeon wants him to be inpatient for a week prior to up his nutrition to give his incision a better chance of healing. That throws a wrench in my life, but not a huge one. I’m not taking any in-person classes this summer and I’ve lived on hospital units with this little monster before, so it’s doable. The only downside is missing Minion a whole lot because I obviously can’t take him with me.

— 3 —

G-tube take #3. Daniel’s gastroenterologist (Dr. No) called yesterday and wanted to admit him THAT AFTERNOON. My response: “No.” When I was questioned as to why I would question her ruling, I explained that I had a doctor’s appointment today (Thursday) that I had been waiting for 6 months and that would impact my ability to function if I didn’t keep it. Dr. No also explained that they would be starting out with him doing nutrition by N-G tube, which is just about the stupidest idea on the planet… which has been pointed out by me, the physician assistant working with Dr. No, Daniel’s nutritionist R, Daniel’s surgeon, Daniel’s regular pediatrician, and just about anybody who has spent more than 15 minutes with him on a meh day.

I may or may not have excavated a new rear sphincter opening for her during our final conversation yesterday (yes, there were several — I don’t think she likes me right now and I couldn’t care less), at which point I **FINALLY** found out that he’ll be admitted on Saturday afternoon and where I get to go for this. (Seattle Children’s is YUGE… bigly even!) She also told me that they *sigh* will have a back-up plan (a PICC line) and enumerated the risks of said plan. (While she was pontificating, I was rolling my eyes so hard at the phone that they fell into the floor of my car because I am familiar with PICC lines… especially since my kid HAD ONE FOR TWO MONTHS in the NICU and my former father-in-law had one for several years.)

I should point out that Dr. No is not incompetent — she’s quite brilliant — but she doesn’t quite get autism well and doesn’t understand that my child is more of a cranky 3-4 year old than a 9 year old, so he isn’t going to be cooperative and leave his N-G tube alone.

— 4 —

MY appointment. I finally got my neurology consult today and it was… intense. My neurologist is lovely (though very high energy and intense) and gave me credit for having a mind (yay!). She’s doubling my migraine preventative, sending me to sleep medicine (I very likely have sleep apnea), putting me on magnesium, and a few other things. My only criticism is that she told me that my stress level would improve if I meditated… which makes me stabby because my stress level would improve if I wasn’t largely managing my medically interesting kiddo with special needs on my own while also trying to finish my degree and be a functional adult.

— 5 —

Duuuuuuude… I just got the news that my dear friend Richard has been elected as Moderator of the United Church of Canada. Having known him for 16 years through blogging, I can honestly say that there is no better person for the job. Congrats, my friend. I am so incredibly proud of you.

— 6 —

Huh. Does anyone else remember all the McDonaldLand commercials? There were toys too apparently.

— 7 —

My earworm. I’m feeling like Armenian choral music today.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

The Simple Woman’s Daybook: July 22, 2018

For Today… July 22, 2018

Simple Woman's Daybook

Looking out my window… sunny and nice.

I am thinking… about various things going on in my parish.

I am thankful… that my Kohl’s order has arrived. I was getting low on pants that actually fit me that are cool enough for the summer.

One of my favorite things… quiet.

I am wearing… an olive green shirt and navy capris, which are actually pants-length on me. #shortpeopleproblems

I am creating… cover letters.

I am listening to… Daniel playing tablet.

I am hoping… Minion calms down a bit. He’s currently attacking Jethro playfully and I think he might get brought to my room for time-out.

I am learning… how to write a good cover letter.

In my kitchen… family dinner tonight so I’m about to go out with Daniel to get some pie from my favorite farm store.

In the school room… Daniel is enjoying ESY.

Post Script… a friend asked for safe websites to find pen pals. I’ve been a member of IPF for years and I also found this listing.

Shared Quote… “Dignified or not, believable or not, ours is a God perpetually on bended knee, doing everything it takes to convince stubborn and petulant children that they are seen and loved. It is no more beneath God to speak to us using poetry, proverb, letters, and legend than it is for a mother to read storybooks to her daughter at bedtime. This is who God is. This is what God does.” — Inspired: Slaying Giants, Walking on Water, and Loving the Bible Again by Rachel Held Evans

Hosted by The Simple Woman.

7 Quick Takes: Cat on a Window Screen Edition

7 Quick Takes

— 1 —

Let the blogger cage fight begin! Bonnie is doing the Sheenazing Awards again this year after a hiatus of several years and is taking nominations until July 21st.

— 2 —

Sigh… I learned a new thing last night: my window screen cannot sustain the weight of a 4 lb kitten. *glares at Minion*

— 3 —

This explains a lot. Arabic has been irritating me and this is probably why. I’m also not loving Memrise so I will probably wait until the course on Duolingo is done being developed.

— 4 —

WANT! Mint chocolate is one of my weaknesses, so these are on my WANT(!!!) List.

— 5 —

Daniel update. His upper G-I x-ray came back normal so next on the agenda will be the nutrition appointment on the 23rd and surgeon consult/pre-anesthesia appointment on the 24th.

— 6 —

For historical clothing lovers… I recommend this YouTube playlist.

— 7 —

Whoa. This is amazing.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: I Need A Nap Badly Edition

7 Quick Takes

— 1 —

Seattle Children’s Appointment #1. I’ve touched in the last 6 weeks on Daniel deciding to stop eating. Well… he decided to start puking up his meds as well. This was not a medicine reaction but a behavioral one (gotta love autism!) and to keep from having to clean carpets nightly or mop floors twice a day, we had to start limiting what he could have several hours before meds were taken. That drops calories significantly and he had lost a couple pounds by Monday when we got to the hospital for the nutritionist appointment. R, his nutritionist, had kittens and went off to consult with one of the gastroenterologists in clinic about whether or not to admit him. My mom was watching me in order to see if I was about to have a panic attack. I was just sitting there mentally calculating what I needed her to bring back down to me from home. (Seattle Children’s is a good hour away without traffic and there would have been some hideous rush hour traffic involved.)

The good news: the gastroenterologist declined to admit him and we were sent home with our marching orders and warnings of what refeeding syndrome looks like. Wheeeeeeeeeeeeeeeeee!!! Our G-I PA of Awesomeness has gotten us an expedited pre-anesthesia appointment/general surgery consult for a G-tube and we had imaging stuff done for that today.

— 2 —

ESY. ESY (extended school year — it’s summer school for kiddos with special needs) started this week. Daniel had to miss Thursday for his audiology appointment and I felt bad about that because he LOVESLOVESLOVES school.

— 3 —

Minion update. Minion continues to be completely and utterly psycho in a kittenish way. He likes to climb chairs, walk across tables, sit on laptops, and Mom has even found him in her bathroom cabinet! (The Greenies are kept in there.) He even decided to void his adoption contract and follow me outside yesterday. (Part of his adoption contract was that he would remain an indoor kitty.) Apparently, he forgot to read that clause in the contract and decided to take a stroll through the dahlias and the grass. Mama is allergic to grass and black kittens (oops!) so he had to be bathed to keep me from turning into a giant hive. (We’ve known about the cat allergy as long as we’ve known that I have a touch allergy to grass. I get shots for both weekly and my previous allergist even used to ask about how my cats were doing.)

Beastling had a vet appointment this morning and our vet techs and the vet of the day were happy to see him again. (Apparently, they used to take him out of his enclosure and play with him when he was at the vet waiting to be adopted.) He is now almost 4 lbs of black furry insanity and doing well. He got two shots and we’re just watching him super closely for a reaction.

— 4 —

Summer class update. I had my resume rough draft due this week in addition to an assignment where we were coming up with phrases to describe aspects of things employers want. I was sweating both assignments and just got the grades back: 100% on each of them. I was stunned! Along with my perfect score on my assignment from last week, I have 100% in the class.

— 5 —

Seattle Children’s Appointment #2 This one was for Audiology and we had to be at Seattle Children’s at 9… which meant leaving the house at 6:45 a.m. so that we had time to grab coffee. (Rush hour in Seattle is worse than any traffic I’ve seen in LA, the Bay Area, or Sacramento.) The audiologist had an assistant who went in and helped with Daniel. I had to go in and sit with him after a while because he started getting teary in the anechoic chamber, but he was able to make it through the hearing test. He did show mild hearing loss in one ear and mild/moderate in the other. These results are going to enable us to get him new hearing aids this fall. Mom and I were stunned by how well he did — it was like, “who is this kid?!?!?!?”

— 6 —

Seattle Children’s Appointment #3 This was an upper G-I x-ray to rule out any issues keeping my kiddo from eating. It was another morning where we had to be at Seattle Children’s at 9 and it was also one of those times where my kid had to be NPO after midnight so he didn’t get his ADHD meds until AFTER the x-ray. Oyyyyyy…

Between my mom and the radiology tech holding him in place, the Child Life person showing him Daniel Tiger on an iPad, and me shooting contrast into his mouth, we got it done. Not something I want to repeat any time soon and he’s been out-of-sorts for two days because of the delayed ADHD meds. Gah.

— 7 —

Duolingo update. I’m loving Duolingo and the way it is set up as it is making me feel pretty confident in my Spanish. Because I’m a language geek, I’ve also added French (well… reviewing it) and Irish. (Irish actually makes sense structurally from a French perspective.) I’m trying Arabic through Memrise and not liking it as much.

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.

7 Quick Takes: Peg Saints, Minions, and LeBron James Edition

7 Quick Takes

— 1 —

Peg saints. My friend Amanda of Worthy of Agape has a shop selling peg saints and she recently announced a saint subscription set list.

(I don’t receive anything for publicizing this — I just happen to have gotten to meet Amanda in January and I like her. :D)

— 2 —

Minion update #1. My little black beastling got his first taste of catnip on Tuesday night and it had an entertaining effect on him. It’s amazing how much noise a little black kitten can make having zoomies around the house and up and down the stairs! I think every cat toy in the house got killed 3-4 times over before he finally crashed off of his catnip high.

My little critter is also claiming he had no knowledge of the “no kittens on the table” rule despite being removed from the table multiple times. (He also claims not to understand that it applies to the kitchen table as well as the dining room table.)

— 3 —

Duolingo. While reading this article on the Klingon language, I saw that they even have a course for it on Duolingo and decided to teach myself Spanish this summer because my only academic class is a 1-credit class that is a requirement for everyone graduating with an ATA from my school. (It’s called “Job Search” and it helps us build a resume, write cover letters, interview well, and write lovely thank-you notes for any interviews we receive.) The website has a surprisingly large number of languages people can learn and people who are bilingual can contribute to the development of courses for different languages they speak.

— 4 —

Minion update #2. The little miscreant is having turbo insane zoomies and is trying to beat up our 14-year-old tiger cat Jethro… who is at least three times Minion’s size. Jet is being a gentleman and just smacking him every so often, but Mom and I are laughing because Jethro did this to Trail Kitty, my parents’ deceased Maine Coon Cat when Jet was a kitten. What goes around comes around, Jethro!

— 5 —

I shouldn’t laugh… but I am. Some Trump supporters got a bit irritated at NPR for tweeting propaganda yesterday. The name of the piece sounds familiar…

THE DECLARATION OF INDEPENDENCE

— 6 —

Prerequisite take on hating various sports teams. LeBron James is headed to the LA Lakers. I can still rag on him because I hate on southern California teams just as much as I hate on Cleveland teams… because southern California is too hot, ugly, and overpopulated. Also… IT’S NOT NORTHERN CALIFORNIA AND WE WISH THE SOUTH WOULD FREAKING SECEDE ALREADY!!!!!!!!!!!!!

That is all.

— 7 —

Minion update #3. I just went downstairs and collected my little black bear cat. He has calmed down a little bit… by which I mean that he is no longer thundering up and down the stairs and beating up my leg. Such a silly little monster!

For more Quick Takes, visit Kelly at This Ain’t The Lyceum.